Search results

I would be knocked out on 25mg Ami as 10mg made me sluggish and then stopped working to get me to sleep I couldnt bump it up because I didnt want increased am sluggishness. I only take 1mg melatonin which is generally enough to get me off to sleep and I dont have any hangover from it. Do you...

thats lucky - the stuff makes me feel even more sluggish in a morning and it takes ages to wear off

ive only cut out beige carbs in my diet - no sugar, fruit juice, processed food, pasta, bread etc etc not a full on keto although I am thinking of moving further that way anyway I just picked up a copy of my medical records and it includes a print out from recent blood tests which I didnt get...

MUS teams in U.K. blowing their own trumpets. Not good

I think this came up when I was sorting my will out and the solicitor had put it in full in bequest ( I have no kids and own house so some will go to charity when I depart)

perfectionism my ass I have a high tolerance for mess and untidyness and my paperwork is not filed in any sort of order I was better on doing housework before I had ME but not that much better..........

nice one @JaimeS ive shared with my local group

from the ME Association website - also registered as ME Society https://www.meassociation.org.uk/me-association/

more seriously the Sussex group, now AFME is tactically distancing itself from the BPS, is the patient organisation they can all point to to say "we're not against patient organisations, one of our best friends is a patient organisation leader" :sneaky:

according to this thread about the Norwegian M E survey the BPS still very much have a downer on ME organisations https://www.s4me.info/threads/the-norwegian-me-association-publishes-survey-on-rehabilitation-services-2-300-responders.5293/

sorry to resort to flippancy I misread this and thought her name was Jennifer Eccles and could only think of the song Lily the pink from the 60s

newly qualified for this this summer and im now a pensioner as well as I had to retire early - still getting used to the idea of being a senior :rolleyes: :wtf:

melatonin very low dose works pretty well for me on non PEM nights - they are the smallest dose you can get 1mg - but it doesnt work when tired but wired maybe I need to take more or something more knock out before I started taking melatonin I found amitriptyline had stopped working and...

oh no thats even more frustrating @Amy101 some GP getting money on the side for regurgitating bits of other peoples articles and giving it fake credibility as coming from a medic maybe you could invite them for a chat to educate them about ME?

i do 16:8 or as close as I can manage most days but never done anything more than that

slapdash job bodging together bits copied from various articles to come up with something to fill space Im sorry they have done this to your family @Amy101 I hope you get an apology and the "journalist" gets a kick up the bum

mm except it is the in house magasine seen by MPs

if the treatment cant be justified as effective and theres nothing to replace it the set up they have to provide the treatment currently becomes defunct and they stop making money from it of course they could make money from giving people supportive symptom management from a Dr but maybe the...

where did they find these people who regularly do 7/8000 steps a day i thought the UK average is a fair bit lower than that eta this BBC article quotes an NHS figure of 3-4000 steps a day on average https://www.bbc.co.uk/news/magazine-33154510

how many of them were restricting carbs though? A fair number of folks with ME are doing some form of reduced carb and also intermittent fasting which as I personally have experienced over the last year reduces blood sugar