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  1. Andy

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Conflicts of interest are 'interesting', "Conflict of Interest Disclosures: Dr Ashar reports grants from the National Institutes of Health during the conduct of the study and personal fees from UnitedHealth Group, Lin Health, Inc, Pain Reprocessing Therapy Center, Inc, and Mental Health...
  2. Andy

    CrunchME

    "CrunchME is a volunteer project, mapping out the research, clinical, tech, and advocacy ecosystem around ME/CFS, Long Covid, and other infection-associated chronic conditions. Our aim is to help provide an information base to new and existing members, and so accelerate progress towards...
  3. Andy

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Trial By Error: Professor Chris Ponting on the NIH’s Findings and the Latest on the Genome-Wide Association Study Update https://virology.ws/2024/03/17/trial-by-error-professor-chris-ponting-on-the-nihs-findings-and-the-latest-on-the-genome-wide-association-study-update/
  4. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 11th March. Facebook: https://www.facebook.com/sci4me/posts/pfbid0vgU72aiCkGApwijgLDLnvYssL7cpjPPe7HuRHdwA1vzSAr5CEVwQaBdedhShYNHal Mastodon: https://med-mastodon.com/@s4me/112116296198634917
  5. Andy

    Psychosomatic Rehabilitation for Post-COVID 2024 Kobelt-Pönicke et al

    Abstract Aim of the study Post-COVID is characterized by a large number of different symptoms. The indication for medical rehabilitation is based on the main symptom. Insured individuals who suffer from fatigue and have no relevant organic disorder are often rehabilitated in psychosomatic...
  6. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 11th March. Facebook: https://www.facebook.com/sci4me/posts/pfbid0LjQgC1ZUZctoJhvk1QCmRJkDbHHVncbfGQjMZ5kTnz8eTEX7sySBNf8iCpFzKdvyl Mastodon: https://med-mastodon.com/@s4me/112110799889744156
  7. Andy

    The Significance of Chronic Fatigue in the Post-Covid Consultation and its Consequences for Outpatient Rehabilitation in the Context... 2024 Dalichau+

    Full title: The Significance of Chronic Fatigue in the Post-Covid Consultation and its Consequences for Outpatient Rehabilitation in the Context of Statutory Accident Insurance Abstract Objective The post-COVID consultation (PCC) is offered as part of a comprehensive range of treatment...
  8. Andy

    Preprint Changing patterns of multimorbidity among patients with ambiguous diagnoses: case of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2024, Bragée

    As far as I can see, "The ICD-10 diagnosis code for ME/CFS (G93.3) belongs to the 'General Signs and Symptoms' cluster", isn't right. G93.3 is the code for "Postviral fatigue syndrome: Myalgic encephalomyelitis", https://icd.who.int/browse10/2019/en#/G93.3, which belongs to "G90-G99 Other...
  9. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Current total is 10,578 https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  10. Andy

    Neuronal dynamics direct cerebrospinal fluid perfusion and brain clearance 2024 Jiang-Xie et al

    Study Suggests During Sleep, Neural Process Helps Clear the Brain of Damaging Waste We’ve long known that sleep is a restorative process necessary for good health. Research has also shown that the accumulation of waste products in the brain is a leading cause of numerous neurological disorders...
  11. Andy

    Neuronal dynamics direct cerebrospinal fluid perfusion and brain clearance 2024 Jiang-Xie et al

    Abstract The accumulation of metabolic waste is a leading cause of numerous neurological disorders, yet we still have only limited knowledge of how the brain performs self-cleansing. Here we demonstrate that neural networks synchronize individual action potentials to create large-amplitude...
  12. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    They obviously didn't want to address the behaviour and wanted to focus on the disagreements about the project - it was a deliberate re-focus.
  13. Andy

    Etiological Factors and Symptom Triggers in Functional Motor Symptoms and Functional Seizures: A Pilot Investigation 2024 Millman et al

    Authors include Anthony S. David, Mark J. Edwards, Trudie Chalder, Matthew Hotopf and Susannah Pick Abstract Objective: This study examined etiological factors and symptom triggers of functional motor symptoms (FMS) or functional seizures (FS) and assessed potential relationships with relevant...
  14. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I contacted the ME Association over Sarah Tyson's unprofessional and abusive attitude and comments made in this thread 18 days ago. Over the course of a week's exchange of emails, they chose to focus on the difference of opinions over the value of this project, and even went so far as to...
  15. Andy

    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    "This acknowledged the ‘patient’s voice’, which had been highlighting the harm done by these treatments for many years." Just so long as you don't judge the 'patient voice' in this way, I guess.
  16. Andy

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Trial By Error: Guardian Columnist George Monbiot Calls Out the GET/CBT Charlatans and the Fraudulent PACE Trial https://virology.ws/2024/03/14/trial-by-error-guardian-columnist-george-monbiot-calls-out-the-get-cbt-charlatans-and-the-fraudulent-pace-trial/
  17. Andy

    A general thread on the PACE trial!

    I think these are the details that we have, PACE trial data
  18. Andy

    Mitochondrial complex I activity in microglia sustains neuroinflammation 2024 Peruzzotti-Jametti et al

    Abstract Sustained smouldering, or low-grade activation, of myeloid cells is a common hallmark of several chronic neurological diseases, including multiple sclerosis1. Distinct metabolic and mitochondrial features guide the activation and the diverse functional states of myeloid cells2...
  19. Andy

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Discussion of George's previous writing on ME/CFS and Long COVID here, https://www.s4me.info/threads/george-monbiot-on-me-cfs-pace-bps-and-long-covid.20126/
  20. Andy

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    As far as I know it never had an open comments section, despite the URL in part saying "comment is free".
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