Full title: The role of interoception in the mechanism of pain and fatigue in fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
Introduction
Pain, fatigue and anxiety are common features of fibromyalgia and ME/CFS and significantly impact quality of life. Aetiology is...
You’re invited to the next DecodeME webinar.
This webinar will be a chance to hear updates about the study's progress and have your questions answered.
It’s on Friday 15th March 02:00pm (GMT) on Zoom and Facebook Live.
There are only 500 spots to watch the webinar on Zoom on the day...
Full title: Medically unexplained symptoms are common in women in tertiary neurological healthcare center: A survey cohort study of persons investigated for suspected multiple sclerosis
Abstract
Background
A significant proportion of individuals with suspicious onset of multiple sclerosis (MS)...
Abstract
Functional neurological disorders (FND) and somatization are common in clinical practice and medicolegal settings. These conditions are frequently disabling and, if arising following an accident, may lead to claims for legal compensation or occupational disability (such as social...
Abstract
The current landscape of clinician burnout is prompting the need for our health care system to revise its approach toward complex conditions such as long coronavirus disease (COVID), myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and other postinfectious fatiguing...
"Case definition
A staged process was used to confirm severe ME/CFS; this required screening blood tests to exclude alternative diagnoses and assessment of symptom characteristics, duration and impact.12 Patients with abnormal blood tests suggestive of another cause for the fatigue were...
New blog, https://www.decodeme.org.uk/study-extension/ - emails are currently being sent to all participants and those on our mailing list.
DecodeME completion date extended to August 2025
DecodeME was due to be completed by August of this year
Extraction of the DNA from samples has taken...
Abstract
Objective
To determine the efficacy of two physiotherapeutic interventions – aquatic therapy (AT) and land-based therapy (LBT) – for reducing pain in women with fibromyalgia.
Design
Single-blind, randomised controlled, equivalence trial.
Setting
Fibromyalgia, Chronic Fatigue Syndrome...
Dave Tuller on Twitter,
"Earlier today I spoke with @adambeyoncelowe about the very robust response from @NICEComms to the charge from GET/CBT ideologues that the 2021 ME/CFS guidelines process was marred by 8 purported "anomalies"
With a general election in the UK due at some point this year, if you want to make use of a postal vote then probably better to get your application in for it sooner rather than later (if you aren't registered already of course). The links in my quoted post still seem fine.
Social media post on the various DecodeME accounts.
"Thank you to everyone who completed the #DecodeME second questionnaire. We have received over 15,200 responses. We will work on analysing the data and will share the findings with you when we can."
"It ought not to be controversial to suggest that the health and wellbeing of all citizens should be at the forefront of the Chancellor’s mind as he prepares his Spring budget.
That’s why I’m calling on him to consider the state of services for those with M.E., also known as Chronic Fatigue...
Abstract
Blood glucose levels fluctuate during daily life, and the oxygen concentration is low compared to the atmosphere. Vascular endothelial cells (ECs) maintain vascular homeostasis by sensing changes in glucose and oxygen concentrations, resulting in collective migration. However, the...
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a heterogeneous disorder with elusive causes, but most likely because of clinical and other biological factors. As a vital environmental factor, the gut microbiome is increasingly emphasized in various refractory diseases...
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