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Full title: First insights into multidisciplinary and multispecialty long COVID networks—a SWOT analysis from the perspective of ambulatory health care professionals Introduction: Multidisciplinary and multispecialty approaches with central integration of primary care, individualized long-term...

Abstract Inflammation is a biological phenomenon involved in a wide variety of physiological and pathological processes. Although a controlled inflammatory response is beneficial for restoring homeostasis, it can become unfavorable if dysregulated. In recent years, major progress has been made...

Project website here, https://idea-fast.eu/ We have a thread for one of their publications, Assessing fatigue and sleep in chronic diseases using physiological signals from wearables: A pilot study 2022 Antikainen et al It is noted in the above thread that one of their exclusions is CFS.

Both those links are to the same study, which is discussed here, Effect of the subjective intensity of fatigue and interoception on perceptual regulation and performance during ...activity, 2022, Greenhouse-Tucknott

Highlights Neuroinflammation is the most convincing hypothesis for ME/CFS pathophysiology, explaining its multifaceted symptoms and pathological features. Across various neuroimaging techniques, including MRI, MRS, PET, and EEG, the frontal cortex was the most frequently observed region. Our...

Clinical specimens for this study A total of 15 and 15 subjects were included in the CFS-only and CFS + FM groups, respectively. They were diagnosed as reported [Citation7]. Thus all subjects fulfilled the 1994 case criteria for CFS [Citation8] as modified by BHN to include severity: Patients...

$61,912, 95% of target 1 day left https://crowdfund.berkeley.edu/project/40018

Abstract Objective Fatigue is identified as one of the most prevalent and persistent problems reported by people with post COVID-19 condition that negatively impacts on everyday living and resumption of pre-COVID-19 lifestyle. A pilot occupational therapy fatigue management intervention was...

Tweet in the post above is first in a thread explaining why someone on Twitter thinks this questionnaire is really good.

Paywalled, so can't tell how many patients, and what selection criteria.

Developing a clinical assessment toolkit for people with ME/CFS and clinical services. Part 1: The Index of ME Symptoms (TIMES) We are asking adults who have been diagnosed with myalgic encephalomyelitis (ME) (also known as chronic fatigue syndrome (CFS)), including those whose ME/CFS was...

Here we report preliminary data demonstrating that some patients with myalgic encephalomyelitis/chronic fatiguesyndrome (ME/CFS) may have catalytic autoantibodies that cause the breakdown of myelin basic protein (MBP). We propose that these MBP-degradative antibodies are important to the...

Rediscovered this article on social media. I do think these particular extracts are interesting, "Pontzer still measures exhaled CO2 to get at calories burned in a particular activity, as he did with Christina’s stress test. But he found that physiologists had developed a better way to measure...

Top 5 donating countries at time of posting; UK - 130 donations USA - 89 donations Norway - 32 donations Denmark - 29 donations Australia - 27 donations

$58,830, 90% of target 2 days left https://crowdfund.berkeley.edu/project/40018

9,584 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Text from tweet, "Today, Visible is launching a research collaboration with neuroscientist David Putrino (@PutrinoLab) David + the team at Mt Sinai have been relentless in pursuing answers for people with #LongCovid and #MECFS. You can help them on this mission" So relentless that he has...

Text of tweet, "“O’Neill told the coroner’s court: “When Maeve concluded that the hospital was unable and indeed unwilling to provide the treatment she needed, she was right.” Article: ‘Hospitals have no services for most severe ME cases, coroner told’" Also links to an article from The Times...

Chris Ponting talked about DecodeME and genetic investigation of ME/CFS in a recent NIH webinar on genetics. His talk runs from 11:57 - 49:35 in the video linked below.

Published papers thread for w/c 20th Nov. Facebook: https://www.facebook.com/sci4me/posts/pfbid02J8CVPxiXgzjQJqf3kMxUk9EcKLjtPmFX4BUFAZPDNCfPbyohBf8z8uYPqfCxUo1ql Mastodon: https://med-mastodon.com/@s4me/111481882854768566