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  1. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Yes, of course others can. I have no available capacity to start a S4ME social media campaign.
  2. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Previously posted: Social media posts linking to the two letters sent by the committee. Facebook: https://www.facebook.com/sci4me/posts/pfbid0cUCd2zbtnYTLtLFB6YwCYk3YHh1cjgsNUByaos5WvvCfDFmXHszGDnU3hnX6GkFXl Mastodon: https://med-mastodon.com/@s4me/112252304846115728
  3. Andy

    Sleep problems in ME/CFS - discussion thread

    Article: My insomnia hell: sleeplessness is a curse – but I think I finally have the answer [not ME/CFS related but familiar 'cures' that didn't] https://www.theguardian.com/lifeandstyle/2024/apr/21/my-insomnia-hell-sleeplessness-is-a-curse-but-i-think-i-finally-have-the-answer
  4. Andy

    Protocol Online cognitive training for people with cognitive impairment following SARS-CoV-2 infection: A randomised controlled clinical trial, 2024, Corbett

    Trial By Error: A New Study from Exeter on “Brain Training” for Treatment of Post-Covid Cognitive Problems https://virology.ws/2024/04/10/trial-by-error-a-new-study-from-exeter-on-brain-training-for-treatment-of-post-covid-cognitive-problems/
  5. Andy

    USA Long Covid Action Project

    Except when certain hypotheses cause harms that are widely reported by the majority of patients surveyed. That is when it is appropriate to be against those.
  6. Andy

    Protocol Online cognitive training for people with cognitive impairment following SARS-CoV-2 infection: A randomised controlled clinical trial, 2024, Corbett

    "The primary outcome will be cognition measured by the FLAME computerised cognitive test battery, with secondary outcomes of cognition, function, fatigue, mood and quality of life. Service use and employment will be collected to support a health economics analysis. Analysis will follow an...
  7. Andy

    Preprint The Energetic Stress Marker GDF15 is Induced by Acute Psychosocial Stress, 2024, Huang et al

    Preprint Psychobiological regulation of plasma and saliva GDF15 dynamics in health and mitochondrial diseases Abstract GDF15 (growth differentiation factor 15) is a marker of cellular energetic stress linked to physical-mental illness, aging, and mortality. However, questions remain about its...
  8. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 15th April. Facebook: https://www.facebook.com/sci4me/posts/pfbid02MTh5tN2VESivezn4QPQvHSfitgHHaRKHjooR882TLm29PQu9oKDCXagzzDhPhun3l Mastodon: https://med-mastodon.com/@s4me/112308490321239132
  9. Andy

    UK: Dr Nigel Speight

    A general thread meant for interviews, articles and such like. Video podcast with Dr Speight, "Post-Exertional Mayonnaise: Myalgic Encephalomyelitis and a history of disbelief with Dr Nigel Speight",
  10. Andy

    Somatic and Posttraumatic Stress Symptoms in Children and Adolescents in France, 2024, Fernandez et al

    Key Points Question Are somatic symptoms associated with traumatic experiences in children and adolescents? Findings In this cross-sectional study of 363 youths aged 7 to 17 years, those with a history of trauma exhibited significantly more frequent and intense somatic symptoms, including...
  11. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    I would certainly agree that it is important to be able to measure how high you are after taking any drugs.
  12. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    "Chair - Professor Harm van Marwijk, Professor in General Practice at Brighton and Sussex Medical School Speakers Sarah Gorst – COMET Initiative Project Co-ordinator (Core Outcome Measures in Effectiveness Trials). A Core Outcome Set was identified as a research priority in the 2021 NICE...
  13. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    "Please join us for this online workshop examining ME/CFS research and underserved groups. There is very little research on ME/CFS and underserved groups. The cumulative lack of validation of ME/CFS as a physical illness has had long-term effects on service provision and research direction and...
  14. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    "Please join us for this online workshop aiming to stimulate drug repurposing studies in people with ME/CFS. The speakers and discussions will look at drug repurposing including clinical use and research findings, study design, and potential drugs such as low dose naltrexone (LDN). This is the...
  15. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    "Please join us for this online discussion about the Octopus multi-arm, multi-stage treatment trial for multiple sclerosis and lessons for clinical research in ME/CFS particularly for drug repurposing studies. This is the second in a series of online workshops on clinical research in ME/CFS...
  16. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    Link to post with a brief description of the workshops and a link to the recordings ************ "Please join us for this online workshop aiming to stimulate clinical trial research in ME/CFS. The speakers and discussions will look at clinical trial design in people with ME/CFS – how to...
  17. Andy

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    This is George's piece from 2003 about the SMC, https://www.theguardian.com/education/2003/dec/09/highereducation.uk2
  18. Andy

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Trial By Error: Guardian Columnist George Monbiot Discusses His Scathing Critique of the “Biopsychosocial” Approach to ME/CFS and Long Covid "Earlier today I spoke with George Monbiot, a British investigative reporter and political activist, who has been a columnist for The Guardian for almost...
  19. Andy

    Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al

    Abstract About 20% of adults experience excessive daytime sleepiness or severe fatigue. Causes include somatic conditions, psychiatric disorders, and medication or drug use. Treatment depends on the underlying cause. If sleepiness persists despite optimal treatment of the underlying condition...
  20. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Interesting. A caveat would be though whether the Lifelines cohort identifies ME/CFS accurately or not, and I believe there are doubts about that.
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