Previously posted: Social media posts linking to the two letters sent by the committee.
Facebook: https://www.facebook.com/sci4me/posts/pfbid0cUCd2zbtnYTLtLFB6YwCYk3YHh1cjgsNUByaos5WvvCfDFmXHszGDnU3hnX6GkFXl
Mastodon: https://med-mastodon.com/@s4me/112252304846115728
Article: My insomnia hell: sleeplessness is a curse – but I think I finally have the answer [not ME/CFS related but familiar 'cures' that didn't]
https://www.theguardian.com/lifeandstyle/2024/apr/21/my-insomnia-hell-sleeplessness-is-a-curse-but-i-think-i-finally-have-the-answer
Trial By Error: A New Study from Exeter on “Brain Training” for Treatment of Post-Covid Cognitive Problems
https://virology.ws/2024/04/10/trial-by-error-a-new-study-from-exeter-on-brain-training-for-treatment-of-post-covid-cognitive-problems/
Except when certain hypotheses cause harms that are widely reported by the majority of patients surveyed. That is when it is appropriate to be against those.
"The primary outcome will be cognition measured by the FLAME computerised cognitive test battery, with secondary outcomes of cognition, function, fatigue, mood and quality of life. Service use and employment will be collected to support a health economics analysis. Analysis will follow an...
Preprint
Psychobiological regulation of plasma and saliva GDF15 dynamics in health and mitochondrial diseases
Abstract
GDF15 (growth differentiation factor 15) is a marker of cellular energetic stress linked to physical-mental illness, aging, and mortality. However, questions remain about its...
A general thread meant for interviews, articles and such like.
Video podcast with Dr Speight, "Post-Exertional Mayonnaise: Myalgic Encephalomyelitis and a history of disbelief with Dr Nigel Speight",
Key Points
Question Are somatic symptoms associated with traumatic experiences in children and adolescents?
Findings In this cross-sectional study of 363 youths aged 7 to 17 years, those with a history of trauma exhibited significantly more frequent and intense somatic symptoms, including...
"Chair - Professor Harm van Marwijk, Professor in General Practice at Brighton and Sussex Medical School
Speakers
Sarah Gorst – COMET Initiative Project Co-ordinator (Core Outcome Measures in Effectiveness Trials). A Core Outcome Set was identified as a research priority in the 2021 NICE...
"Please join us for this online workshop examining ME/CFS research and underserved groups.
There is very little research on ME/CFS and underserved groups. The cumulative lack of validation of ME/CFS as a physical illness has had long-term effects on service provision and research direction and...
"Please join us for this online workshop aiming to stimulate drug repurposing studies in people with ME/CFS.
The speakers and discussions will look at drug repurposing including clinical use and research findings, study design, and potential drugs such as low dose naltrexone (LDN).
This is the...
"Please join us for this online discussion about the Octopus multi-arm, multi-stage treatment trial for multiple sclerosis and lessons for clinical research in ME/CFS particularly for drug repurposing studies.
This is the second in a series of online workshops on clinical research in ME/CFS...
Link to post with a brief description of the workshops and a link to the recordings
************
"Please join us for this online workshop aiming to stimulate clinical trial research in ME/CFS.
The speakers and discussions will look at clinical trial design in people with ME/CFS – how to...
Trial By Error: Guardian Columnist George Monbiot Discusses His Scathing Critique of the “Biopsychosocial” Approach to ME/CFS and Long Covid
"Earlier today I spoke with George Monbiot, a British investigative reporter and political activist, who has been a columnist for The Guardian for almost...
Abstract
About 20% of adults experience excessive daytime sleepiness or severe fatigue. Causes include somatic conditions, psychiatric disorders, and medication or drug use. Treatment depends on the underlying cause. If sleepiness persists despite optimal treatment of the underlying condition...
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