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:rofl: I don’t know this, just because rats don’t live long and publication takes ages

These seem to be objective measures, which removes some scope for bias. I’m fairly sure the rats don’t experience placebo effects. The main area for bias seems to be publication- are the null studies simply not published? The human metabolics study could be due to fishing expedition issues (if...

Yes I thought it was better than PACE too ;) Though I’m not commenting on it because I think they were actually studying CFS in rats. I can’t read the methodology but when I’ve read about rat models of CFS before it’s simply involved exhausting them which isn’t the same at all. I’m interested...

So focusing on the anatomy of ST36/Zusanli Both from https://www.acupunctureclinic.ie/acupuncture-point-anatomy-found/ I’m out of spoons to evaluate this info.

@Esther12 Yes as I commented we should take it with a pinch of salt that the rats have CFS, it’s just that I saw it because I get CFS abstracts sent to my email. The CFS bit isn’t what I’m commenting on here. It’s more that that paper set me thinking about TCM again. What’s curious is objective...

Ha no one seems to want to comment on empirical studies into complementary treatments, too much of a hot potato? ;) My mind is currently stuck in the warren of whether acupoints have an anatomical basis though so I’ll add a couple more thoughts in case anyone else is interested. Deciphering...

I woke up thinking about the mysterious impact of prodding just below the knee. It is very puzzling. This graph is from that Nature article which was a study on 20 healthy men (not a large sample but I don’t think you’d expect that with metabolomics). On the lower graph B) Construction of...

This is probably more useful again that same acupoint below the knee but using a metabolomics approach in humans (haven’t read yet) https://www.nature.com/articles/srep19942 (My bold) The metabolomic approach is interesting anyway

A similar study is And this one brings in immunoregulatory benefits from the same acupoint https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810363/

Before thinking about other relevant studies, you probably need a sense of what they’re talking about. This video shows you how to do acupressure on Zusanli (Stomach 36) It’s considered a point for low metabolism, immune issues, fatigue and digestive issues. It seems like western science...

I got this in my inbox today and it piqued my cognitively foggy interest for a couple of reasons. NB these posts move onto considering a study on metabolomics and the credibility of acupuncture (the thread isn’t specific to this study). First of all I want to comment that I’m very sceptical of...

If I pace well I avoid fatigue as a sensation. Unfortunately my self control lets me down and I end up spending a lot of time right on the edge of my energy envelope (at the point symptoms are increasing but not going into a full crash). I’m trying to be more disciplined but it’s mind bendingly...

I’ve been working on the Chronic Illness Inclusion Project (though I have to stop working unfortunately). Something we’ve been trying on for size is the term Energy Limiting Chronic Illness. The concept comes from trying to find a non niche alternative to the term Spoonie. I thought that what...

Progress might be slow if they’re following the collective evolution process ;)

@Dr Carrot did they convincingly improve exactly at the time of LP? There’s two confusing aspects: genuine/classic ME can fluctuate wildly and sometimes this might coincide with having done something (coincidentally) specific AND once someone has done LP you can no longer trust anything they say...

Does the nerve conduction test pick up SFPN? I had that with the EMG and the nerve bit was fine for me (muscle abnormal but not specific enough to diagnose). Or is it only skin biopsy?

My ME dyslexia is worse than my general cognitive ability so I’m struggling to follow the twitter threads, and can’t pretend to have even made an attempt to read this thread, but the Popper thing particularly interested me. We did look at this when #MEAction UK were writing our NICE feedback...

*We definitely don’t have a strategy to discourage people from donating to research*. This is slightly out of context from a discussion that #MEAction volunteers were having between ourselves about this: There are reasons to believe this may not be as great an effect in UK but there probably...

So also sitting upright? Although I can be up, as in not in bed I don’t tolerate sitting upright feet on floor (at a dinner table type sitting) for very long. I can pass as normal for about an hour doing this and then have to move to a sofa with my feet up as I get a lot of pain or...

May need to tread carefully around UK ME politics while the NICE guidelines are being reviewed? They are making noises about wanting to hear patient input so there could be a way to channel this into the process? The other thread was too much for me to read so I don’t fully understand.