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  1. Kitty

    News from Doctors with ME

    I'm sure I remember it from the feminism of the late 70s and into the 80s. The tradition it describes is still alive and kicking but some of the barriers are different, and perhaps that's why it seems so dated now. But yes, in this context a distraction.
  2. Kitty

    News from Doctors with ME

    It used to be common in the UK too, but seems to have begun as a fairly specific term referring to obstacles to women achieving senior leadership and board roles. It was expanded to include other minorities, and to cover other situations, but fell out of regular use maybe 20 years ago. It's...
  3. Kitty

    News from Doctors with ME

    Apologies for not making myself clear—I was talking about the overturning of Roe Vs Wade by the US Supreme Court. Against that backdrop, it would be somewhat challenging to attract much attention to the case of regulatory capture as it applies to ME.
  4. Kitty

    News from Doctors with ME

    Odd timing too, given that there's a high-profile and rather clearer example of regulatory capture in the news, and that is what people are actually interested in this weekend.
  5. Kitty

    Psychology needs to get tired of winning, 2022, Haeffel

    Even five years ago I wouldn't have believed how extraordinarily tiresome and difficult it is to sort out people who say they've won an election even when the evidence shows they haven't, or insist that a war isn't a war even as they're launching thousands of missiles. I expect it'll be equally...
  6. Kitty

    Orthostatic Challenge Causes Distinctive Symptomatic, Hemodynamic and Cognitive Responses in Long COVID and ME/CFS, 2022, Vernon et al

    And mine—in relation to the systolic pressure, at least. 107/89 would be the sort of range for a bad day. It's not like that all the time, though. I was recently asked to record BP, resting heart rate, and single-lead ECGs twice daily for two weeks, because as well as low pulse pressure, I...
  7. Kitty

    Yoga is effective in treating symptoms of Gulf War illness: A randomized clinical trial Hayley,Younger et al 2021

    It's probably helpful in the way that sucking sherbet lemons is helpful for ME. They taste nice and take your mind off it for a bit.
  8. Kitty

    What is the evidence base for non-infectious precipitating factors?

    Best answer I could give to the question is "none", I guess? We don't know what the trigger is in post-infectious cases, just that there's an association with some viruses. If it's also reasonable to say that asymptomatic infection is possible with those viruses, it makes it difficult to be...
  9. Kitty

    In which way could Psychiatry and Psychology help investigate ME/CFS (and what exactly is Neuropsychiatry?)–Discussion Thread

    I guess psychiatrists helped me by being the only four doctors who actually thought I was ill in my early years of ME. They couldn't treat me but they believed and supported me, and the last one helped me change from my utterly crap GP to a good one, and I'll always be grateful for that. Is it...
  10. Kitty

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    True, but what cheers me is that NICE had already decided to do the right thing, and they're one of the bodies that will actually drive this. Javid's intervention is really important, but it's the clinicians, researchers, and funding bodies who'll need to deliver. He's given the sled a good...
  11. Kitty

    Improving the identification and treatment of co-morbid depression and/or anxiety in adolescents with CFS/ME, 2021, Loades (Ph.D. Thesis)

    Think I'll wait for the preliminary study on co-morbid batshit rage among young people who have to put up this sort of codswallop AND deal with ME. Will be much more entertaining, and might even come with diagrams.
  12. Kitty

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    I thought that was the only explanation. Yup. Same thing with doctors; when I was first assessed for a disability allowance 20-odd years ago, I got a fantastic retired GP. Really clued-up, really warm and funny. He clearly knew my own GP from when he was in practice, so I asked when I next had...
  13. Kitty

    Remedee's endorphin stimulator for fibromyalgia gains FDA breakthrough status

    They probably just haven't realised that someone invented the vibrator really quite a long time ago.
  14. Kitty

    UK: Dr Sarah Myhill

    But surely lots of people have what could be labelled "proprioceptive dysfunction", yet they don't have ME? I'm relatively still compared to others in the family, but all the same my toes twitch constantly because my brain keeps wanting to know where my feet are, I have to fidget a lot because...
  15. Kitty

    The effect of water temperature on orthostatic tolerance: a randomised crossover trial, 2022, Lain T Parsons et al

    I think it might be too unspecific, tbh. It must be common in the very young, the very old, and folk who're unwell with all sorts of conditions. Oh, and carrot-topped pink people like me.
  16. Kitty

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    It's really frightening that over a million people have had it for a year or longer. Typically, self-limiting post viral syndromes resolve before the year mark. That sounds like a familiar story too. People who can't afford to rest; who can't rest adequately because they have young children or...
  17. Kitty

    Neurovascular Dysregulation and Acute Exercise Intolerance in ME/CFS: A Randomized, Placebo-Controlled Trial of Pyridostigmine, 2022, Systrom et al

    The site says you have to login or make a payment, so unfortunately it's not free to read.
  18. Kitty

    Guardian UK article, Doctors could soon face action over ‘misleading’ social media posts, April 2022

    I guess it depends whether they're speaking in their professional capacity or not. We can all witter on about anything we like as private individuals, but when we're on the clock, the rules change.
  19. Kitty

    Post-viral mental health sequelae in infected persons associated with COVID-19 and previous epidemics and pandemics:...., 2022, Zurcher et al

    Extra-terrestrial teacher: "And of course that lot died out because their ecosystem was collapsing, but half their researchers carried on sh*tposting about made-up mental health disorders."
  20. Kitty

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    From me: Hello from Kitty in the middle of England. I have had ME since 1976, so it has been a long journey, but I am very excited about the new study into the genetics of ME. Medical researchers are working directly with patients, and hope to receive DNA from 20,000 British ME sufferers to...
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