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  1. Mij

    Designing a questionnaire on ME/CFS onset

    Yep. My definition of a relapse is when you experience an 'event' and never go back to your baseline. You might develop new symptoms. My 'event' was from taking immune modulators in 2001. At the time I was feeling 90% improvement and become very ill one month after taking the...
  2. Mij

    Designing a questionnaire on ME/CFS onset

    Good point. I have experienced periods of full stop loss of stamina since meno that is distinctively different from ME.
  3. Mij

    Covid-19 vaccination experiences

    @hinterland Sometimes I get palpitations and heart rate increases from viral infections. I wonder if your palpitations are the result of an immune response from the vaccine? I would mention it to your doctor.
  4. Mij

    Covid-19 vaccination experiences

    Oh no :( I'm rethinking getting vaccinated now.
  5. Mij

    Covid-19 vaccination experiences

    Wearing rubber bands on my wrist to remind that I have something in the oven only reminds me that I need a haircut. Still burning my walnuts. Go figure
  6. Mij

    2021 Guardian Australia: Request for contact from people with multiple chronic pain conditions

    About the Author Gabrielle Jackson is an associate news editor at Guardian Australia, and was previously opinion editor there. Before that, she was a senior journalist at The Hoopla. Gabrielle has lived and worked in the USA, UK and Australia as a journalist and copywriter. She currently lives...
  7. Mij

    Iron deficiency and dysregulation

    I just wanted to post this here. The comments are interesting.
  8. Mij

    UK: Observer/Guardian article: "GPs stricken by long Covid ‘shocked and betrayed’ at being forced from jobs"

    Some don't receive much compassion from their own families, and are raised and expected to tough it out.
  9. Mij

    An interesting article about sleep

    I have had very minor sleep issues in the 30 yrs of ME.
  10. Mij

    Covid-19 vaccination experiences

    Like @Trish this happens to me occasionally when I go into a deep sleep in the afternoon. One time I answered my tv remote thinking it was my phone, and couldn't figure out how it worked. I wouldn't describe it as brain fog though.
  11. Mij

    ME/CFS Alert Episode 126: Interview with dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at NIH

    I didn't experience PEM until 6 years after onset because I didn't go over my 'energy window' during that time. I was not exercising. The term PEM wasn't in circulation until 2001, even my ME doctor never used that term. My experience with PEM is very distinctive and delayed. Not one...
  12. Mij

    Covid-19 vaccines and vaccinations

    An infectious disease doctor explained how it's very important to get the surge down in India because it will create new variants that our current vaccines won't protect us from. He compared the differences between Ebola and COVID respiratory-type viruses. and how Ebola deaths were more...
  13. Mij

    Odd leg symptom

    Superman was given a highly diluted dose of kryptonite, thus curing his serious kryptonite allergy and allowing him to star in yet another amazing adventure of Superman.
  14. Mij

    Well-known, famous people with Covid-19 and Long Covid

    White House Senior Adviser for COVID response Andy Slavitt reveals that his son has LC.
  15. Mij

    Well-known, famous people with fibromyalgia

    I've watched stories about soldiers with PTSD who were later diagnosed with FM. There is most likely a risk factor for the development of symptoms of FM in genetically predisposed individuals?
  16. Mij

    COVID-19 symptoms over time: comparing long-haulers to ME/CFS, Jason et al, 2021

    It appears as though the stock photos images of LC and ME/CFS are going to be doing the talking :emoji_rolling_eyes:
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