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It's not surprising, ME has been dismissed and described as 'mysterious' for decades. Just sweep it under the rug and look the other way. The shocked expressions of news reporters/journalists when interviewing LC patients and how they felt misunderstood and dismissed was interesting to watch.

How does the pain compare to 'ghost pain' from an amputation of a limb? They used to think that ghost pain was psychological, but later discovered that the 'pain' originates from the spinal cord/brain. Had a patient were I worked years ago who had his little toe amputated in a Russian...

Neurogenic Orthostatic Hypotension

I feel light headed from postural changes and my heart rate shoots up when I drink coffee in the morning. I don't feel faint, but have to get up slowly after lying down. I read this which leads me to believe that I don't have low BP or might also have something else: Caffeine is a widely...

I still haven't figured out why OI is worse in the morning for me. I'm quite fine starting around 6pm. Perhaps it's something else that is causing the need to lie down more during the earlier hours?

Same here, super fast.

I have no idea what they are referring to, but I do alternate nostril breathing yoga which helps calm my nervous system. It's quite effective for me when my brain and body are on 'overdrive', or when I have to got out somewhere and feeling nervous. I do the 'exercise' lying down.

My GP told me that women who have experienced hot flashes and other symptoms of menopause had a 50% lower risk of developing the most common forms of breast cancer compared with postmenopausal women who had never had such symptoms in a study. Abstract here I've been in menopause for almost 6...

I get hot when I'm in PEM (after exercise years ago). I've never had chills. But I do have low body temperature (95.6) for 2 days after PEM starts. It's weird. Menopause is hot and then very chilled, or chilled without ever getting hot.

Yes the experiences are similar. I usually have to wait a few days to know the differences between flares and actual reactivation of viruses. Flares last a few days in my case, reactivations of viruses can last for well over a year and includes some bizarre symptoms.

Also, it's important to include 'permanently disabled'. Yes, same in Canada.

I witness the shocking transformation of my face and posture when I'm at the hair salon. I'm sitting in front of the mirror from beginning to end talking. I'm looking at a different person after an hour. I wonder if he notices?

Is there a box where you can describe the nature of your disability? Can you attach a written letter describing it?

I believe Dr. Chia found enterovirus in an autopsied brain donated from an ME patient. It was never detected in the patients blood or stomach tissues.

Richie Shoemaker's trial with low dose erythropoietin to lower CDa: https://www.survivingmold.com/docs/Treatment_of_elevated_C4a.PDF

I was going to write something until I realized that I misread "Mean symptom scores were significantly increased after exercise through the use of daily diary" for dairy. :laugh: Never mind.

@Skycloud I think his behaviour makes it quite clear that he has no interest in engaging with anyone?

I had my first Pfizer end of June and second jab end of July. I have been experiencing a vestibular virus for almost 2 years and been quite sick with it. The day of my jabs I had fever blisters and swollen glands. I didn't have any negative reaction to both jabs, only a sore arm for...

Abstract Fast-replicating neurotropic herpesviruses exemplified by herpes simplex virus-1 (HSV-1) naturally infect the central nervous system (CNS). However, most individuals intrinsically suppress the virus during a primary infection and preclude it from significantly damaging the CNS...

Agree with you about supporting someone who supports you. I was thinking of my narc sister who went on and on about her flu after we hadn't seen each other for 20 years and expected me to make her breakfast.