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Or Nina Muirhead?

This. Many of Jon Stone' s patients are happy to have a diagnosis that sounds " real" after being fobbed off and gas lit. They seem completely unaware re the doublespeak aspect. He seemingly has a very empathetic manner, which if you have been treated abysmally by medics previously would...

My aunt and my daughter ( and my daughter has many of my aunts traits)

alDrifter, post: 229609, member: 605"]According to this paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2379748/?page=2, the ME Association said there were 150,000 people in the UK who had ME back in 1993. Now they say 250,000 people have it. Where did the extra 100,000 come from? There's...

My aunt had these, which instigated severe hear palpitations. Twice she went to hospital via ambulance, wore monitors and nothing found. ( a relief not to have underlying heart issues). She had a private consult as NHS did not seem to be able to say her heart was ok and consultant used a...

This is where charities need to get involved in summarising flaws , usually silence reigns. Given the inadequate definition of PEM this is interesting but of little value. @Russell Fleming @Action for M.E.

Bile acids also affect C Difficile ( daughter has high toxin levels of both C Diff A and B but within (low) normal range on total bile acids) https://www.cell.com/cell-chemical-biology/fulltext/S2451-9456(18)30335-0 https://www.nature.com/articles/s41522-019-0087-4 eta second ref

@mariovitali

How many of these are actually randomized and controlled trials?

Given the prevalence of gut issues in those with ME and abnormal metabolism being highlighted by different researchers, I'm m keeping an open mind. However if root cause is not determined I can only see potential temporary respite being obtained via FMT. I believe there was someone on PR...

Did the 2 who found no MUS perhaps find something else? Whilst many GPs could brush up communication skills , this should not focus at being able to label MUS via a semi structured BPS format for consultations. How exactly were GPs advised re improvement

Stating the obvious has become an art form, but perhaps cognitive reinforcement is required for the consultant team. I sat in on an educational psychology feedback workshop, which due to parents present was mainly concerned with autism, dyslexia and placing kids in appropriate schools at...

You can get GI Map stool test done privately - I don't know of NHS does this . We opted for this and it has been illuminating. Sadly does not mean much to GP but highlights bacterial balance tending to fermenting upper gut, bacterial dysbiosis ( not enough good bacteria) C Diff and drug detox...

My aunt is a Myhill patient. It is not wonderful, she cannot do keto and generally had a good diet pre ME, so minor tweaking , only. But she is listened to, has a key role in her illness and has had access to testing not available on NHS. Here we have nothing combined with a GP medical...

How does this tie in with previous T cell research? Do we know if other T cell research involved anyone taking Ami / Notriptyline which may have affected results given above?

If this can only be delivered according to protocol at a single site is the protocol not adequately defined/ are staff less engaged with the process ? I thi k more detail is needed for dropping a whole cohort. ( how much does this affect stats?) I simply don't understand how any child with ME...

This

Very true. Unfortunately quantity of life is often at the cost of quality of life. We invent new conundrums .

Somewhat sad - wonderful euphemism. This is where language matters.

Another ship setting sail .......