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Would low blood volume impact the functional capabilities of any of these small differences?

I am probably being incredibly stupid, not having much biochemistry, but to me small differences are not the issue. Given the common nature of expression , surely in a system s condition it is not the individual difference s, but the cumulative effect of them that is as important? How do these...

Exactly this point. Over and over again .

Exactly this.....that's also why sleep hygiene, GET and CBT work....

Note semi structured interviews - the framing of the topic would be interesting to see and may account for the fatigue focus and any introduction of bias; is there any way to access this ?

I find it disheartening that after so many years of adolescent research, that researchers and those treating the illness have not got to grips with the basics. It is not fatigue, it is fatiguability that distinguishes things; moreover fatigue may not be the most debilitating of symptoms for...

Follow the money...

New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition. Questionnaire based, pre diagnosed Mild/ moderate but not housebound I don't know if any comorbidities (OI, EDS etc) have even been thought about I have not...

Very interesting . Does Phair know of this ? Replication out with a severe illness group?

The whole thing is like a version of jenga. I think Cochrane are wondering just which stick to pull out .

Contrast with the HPV review could not be more stark.

Thank you. Downloaded to PC. Perhaps worth publicizing on Twitter?

Where are the charities on this? The IAPT programme is not new, it dosn' t take much savvy to see the planned progression.

Wow. In context of current situation it may be worthwhile making these extracts public.

Thanks. Sometimes good just to bounce stuff off someone! Sadly professionalism lacking from endo and head gp in practice had huge lack of knowledge.

Is it ok to PM on this one ? I would like to attach a couple of photos that have been agreed to share privately?

General rheumatologist, who took a thorough history, asked questions re sjorgen' s, pain and did exam. My daughter is not super flexible , however chiropractor had picked up hip issues, jaw/ shoulder, and joints being "hypermobile" - very easily adjustable and would provide copy notes . Chiro...

Thanks for replies. I think electrolytic balance is definitely affected. ( probably blood volume effects too) We have just sent off a hair test (did one at the beginning of the year and results were not good for electrolytes) to see what movement there has been. Magnesium seems to be an issue...

MJW heads up the children section of AfME

There is little love lost between these organisations. As a gesture it may signify a new approach.