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    David Tuller: Trial By Error: How to Avoid Ethical Review

    nothing to see - move along...
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Will PM any responses
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Bristol uni - research ethics tool down ..... http://www.bris.ac.uk/social-community-medicine/people/simon-m-collin/pub/95047718
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    would you like a few posts on parents forums? I take it its Bristol/ Avon area
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    but do any parents have them?? or schools?
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    Tetrahydrobiopterin

    BH4 is the short cut to methionine synthesis if the normal.pathway is compromised ( mthfr mutations being common) Is there an" order" for BH4 function/ use which would compromise other actions if it was prioritised? It strikes me that it's not potentially the I.ia t a couple of mutations for...
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    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    COI
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    SEN Magazine: "ME and you" by Mary-Jane Willows

    The problem with part time attendance is that there is pressure to increase it. It's a bit like GET- there is the inherent expectation that duration and frequency of attendance will increase. We found part time more stressful as there is no 'catch up' mechanism for classes missed in most...
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    People 'more likely to feel pain on humid days' (BBC article)

    Definitely a weather effect . Low pressure is biggest issue - as this is a harbinger of higher humidity it makes sense.
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    UK: Document: MEDICALLY UNEXPLAINED SYMPTOMS (MUS) IN CHILDREN AND YOUNG PEOPLE, 2018

    Consequences Real conditions not picked up FII accusations increasing Who collates these?
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    New video: What is ME?

    Great video @Adam pwme . Perfectly pitched for those with no inkling. Charities should be using these for awareness raising and education - no need to spend funds commissioning media tools when these , and the Voices videos exist and tell it so well . @Action for M.E. , @Russell Fleming
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    UK: Document: MEDICALLY UNEXPLAINED SYMPTOMS (MUS) IN CHILDREN AND YOUNG PEOPLE, 2018

    @Diane O'Leary - thoughts?
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    this
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Intelligence dosn't come into to it. It seems eminence does
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    Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2019, Friedberg, Sunnquist and Nacul

    FINE is also what the RCGP module seems to be based upon - it would be good if it had wider coverage
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Perhaps the most concerning aspect of this is how research is translated into practise - if there is the green light to essentially do as you please without due accountability then it is little wonder that we have the responses in the ME Action survey; those related to paediatrics are...
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Between this and Sterne(?)' s bias assessment for Cochrane I fear that future research will get even worse. Who is protecting whom?
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    Conference: Medically Unexplained Symptoms / Somatic Symptom Disorder Improving the Primary Care Response -Bristol, UK, July 2019

    I'm sure there have been threads with Mark Edwards papers discussed previously?
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    News from Scandinavia

    The use of GET can result in the diagnosis of PRS (when condition worsens) and children being removed from families
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    Conference: Medically Unexplained Symptoms / Somatic Symptom Disorder Improving the Primary Care Response -Bristol, UK, July 2019

    Is Joan Crawford a member here? Might be of interest to her
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