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The segment wasn't about M.E. It was about any and all conditions that have associated with them fatigue and energy impairment - she just happened to mention M.E at one stage.

The guest is Catherine Hale who works with the Chronic Illness Inclusion Project who recently released the report on energy impairment: https://s4me.info/threads/centre-for-welfare-reform-report-energy-impairment-and-disability.14887/#post-256789

Yes, he probably has the same chip on his shoulder as most people. But highlights the issue with the name PVFS, in the same way CFS is not a helpful term.

I think he thinks he is still experiencing the illness per se. Can anybody be certain he is not experiencing longer-lasting Covid symptoms or that the virus is not still there in some form or other? Of course, the longer this goes on, the less likely that is. But at the level of weeks I'd say we...

I agree. I think Nina and Dr Hng have or are working on something together. Nina does a lot of work on ME education - a lot of it behind the scenes.

They have clearly given their consent to being filmed, so in that respect there is nothing we can (or should) do. I am also bothered by the negative impact filming a session could have (in the way it may influence the course of the conversation, even indirectly), and also by the fact Alex is not...

Can you link to the video you are referring to. The link takes you to his profile page. I assume you are talking about the In Therapy series. He / the OHC produce so many videos it is almost impossible to keep up.

That's because it's bollocks. :)

I have messaged Nina about this. I think she is in contact with Dr. Hng.

It would be best to find out what the barriers to publication were. It could be expense, or something like that. Is she on the forum?

I don't know if I'll ever get to read the full report, but I think this is a good approach and a sensible overarching theme with which to advocate for change.

https://www.centreforwelfarereform.org/uploads/attachment/681/energy-impairment-and-disability-inclusion.pdf?utm_source=Chronic+Illness+Inclusion+Project&utm_campaign=3f6549f63d-EMAIL_CAMPAIGN_2019_12_10_04_51&utm_medium=email&utm_term=0_7303002384-3f6549f63d-78135457 This has just been...

Yes - this is what I thought, and perhaps what the paper should have been.

Thanks. de Quervains is sort of ruled out I think. The pain is more on the inside of my palm rather than on the upside of my hand/wrist and in fact the pain is not the issue - it's moving it / stiffness.

Sorry - my mistake. I've got you now.

Ok, understood now. No - I saw a different tweet. Someone asked what mito testing was used and someone replied Myhill/McClaren.

Hi Grigor. I don't understand your response to my question. Are you saying the test is not used in this piece of research?

I have not read the paper, or even looked at it. Have they really used the Myhill/McLaren mitochondria tests (as I just read on twitter)?

I am a skeptic by nature and having worked in academia I feel the quality of science being published is slowly being reduced by ever increasing funding and publication pressures. I have no biomedical or clinical science background but I am sort of shocked by some of the stuff that gets published...

I may have to buy one - my right thumb is just driving me mad. Just constantly stiff and swollen at the base of thumb but not arthritis apparently. Anyone use one?