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Did your ME/CFS involve a viral trigger?

See my first post.

To appease my curiosity, please answer the above poll. Please give this poll a miss if you've not noticed issues with lymph nodes in your neck. Thanks.

Yep, four months seemed totally optimistic given the volume and detail of the comments. But why wait until 90% through those four months to decide a 100% extension (another four months) is needed!

It's actually Scientific Reports (a Nature Publishing Group journal), which is a journal that often publishes work rejected by the top-tier journals, such as Nature. But, it's still a high-profile journal.

Yeah, I think the responses are under wraps until they are published with the guideline. I think we might have seen one or two, though I can't remember who from.

What feedback from BPSers have you seen? And where?

This is ridiculous! They knew the number of comments received back in early January. We are just over a week until the embargoed report is released and they've just realised how many comments they have? I don't believe it.

Yep, it's definitely now being used to describe an acute reaction to exercise (the type you'd expect with cardiovascular impairment).

Merged thread https://mylongcoviddiaries.medium.com/i-finally-have-a-diagnosis-for-long-covid-and-its-shocking-82ddcb214656 This is a personal blog about one patient finding the probable cause of her long-Covid symptoms (blood clots in lungs and fluid around heart). It's interesting because the...

Thanks for your comments. It's not a hypnic jerk - I do experience these and it's very different. These surges are totally within my body, and feel like a release of a hormone or chemical(?) @NelliePledge 's experience is the most similar to what I'm describing.

Another very hard to describe phenomenon. I get this when I'm crashing. Perhaps half-a-dozen times a year. It only happens in bed when I'm led waiting to fall asleep. I get this bizzare second-long surge that I can feel in my head (possibly traveling up to head from torso). I'm sure it's not an...

I'm under a rheumatologist at the moment, who's actually quite helpful. The last correspondence I got from him after a telephone review appointment contained some innaccuracies, although they weren't malicious in anyway. The letter was sent to my GP, as is standard practise. I'm going to write...

This has not appeared yet. I suspect it must still be in peer-review.

But also that a *subset* of LC patients actually have PVFS and will 'develop' ME/CFS.

@Jonathan Edwards Any input here, our resident rhumy?

Inflammation of the fascia is exactly the conclusion I came to after lots of google-based research. I know this is an issue for me because the whole right side of my leg (the IT band) is very tough (hardened), tendinous, and sensitive. There are parts where it almost feels scarred, and it...

I've had some 'soft tissue' issues appear over the past few years. There is a small area where my tricep meets my elbow joint on the back of my arm that gets sore and it just won't 'heal'. I also have issues with the area around the base of my thumb on that hand. No injury for either, but they...

This was really my point in my last post about Charles Shepherd's comments. I cannot relate to those with long-Covid who are coughing and sputtering (and in fact vomiting) because they're attempting to go up a stair. It showed these patients on Dispatches last night. Those are real time...

I thought it was reasonably good. Lead of Bradford long-Covid clinic said they were using regimented exercise at start. Wasn't working, so have moved to energy management approach. Edit: How many may have been harmed in those first six months if they were indeed pushing GET (or something...