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  1. Kalliope

    Deep Phenotyping of Neurologic Postacute Sequelae of SARS-CoV-2 Infection, Mina, Nath et al, 2023

    Neurology, Neuroimmunology & Neuroinflammation Deep Phenotyping of Neurologic Postacute Sequelae of SARS-CoV-2 Infection Abstract Background and Objectives SARS-CoV-2 infection has been associated with a syndrome of long-term neurologic sequelae that is poorly characterized. We aimed to...
  2. Kalliope

    Long Covid in the media and social media 2023

    JAMA How Primary Care Physicians Can Recognise and Treat Long COVID (includes interview with among others Lucinda Bateman) Quote: Experts interviewed for this story offered some basic guidance for primary care physicians: Believe the patient. “Say it out loud. They need to hear it,” Palacio...
  3. Kalliope

    Crowdfunding: Trial By Error: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Spring 2023

    wohoo!! 100% :party::party::party: https://crowdfund.berkeley.edu/project/37217
  4. Kalliope

    Do diagnostic criteria for ME matter to patient experience with services and interventions?, 2023, Kielland et al

    They also link to an article from one of the two research organisations behind this project, Fafo. Ny forskning om ME-pasienters møte med tjenestene google translation: New research on ME patients' encounter with health care services quote: A new research project shows that ME sufferers quite...
  5. Kalliope

    Do diagnostic criteria for ME matter to patient experience with services and interventions?, 2023, Kielland et al

    Great! A new publication from TjenestenogMEg - about ME patient's experiences with the health care system. Here is a summary they've shared on Facebook. Google translated: Today, the second research article from the project was published. The article answers the Research Council's questions...
  6. Kalliope

    Mike's EU Marathons

    Tweet from Mike who has had lunch at Haukeland University Hospital today: Also, 19th of April, he wrote an article about the situation for ME patients in Norway, interviewing Kristine Nilsen Oma and Luna Anette Løndal. http://www.mikeseumarathons.eu/norway.html
  7. Kalliope

    News from Scandinavia

    Recovery Norge announces on their Facebook page that Henrik Vogt MD is quitting as leader of the organisation. Vogt founded the organisation in 2017 together with Thomas Overvik, who is also leaving the board. New leader is Hilde Søndrol who has been in the media several times with a recovery...
  8. Kalliope

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    The Swedish newspaper Aftonbladet has an article about the study today. It's paywalled but title and the two first sentences are: New study: Long Covid may be caused by lockdown Long-term covid symptoms affected as many young people who had not had covid-19 as those who had been infected...
  9. Kalliope

    Well-known, famous people with Covid-19 and Long Covid

    Simon Décary just announced on Twitter that he has tested positive: It finally entered our household for the first time. Maintaining strict rules and masks allowed me to get to this point. I am extremely privileged for my awesome team that will take over most of my activities so that I can...
  10. Kalliope

    Long Covid in the media and social media 2023

    TV2 has an article today about Long Covid researcher Arne Søraas who has sent several reports of concern to the Norwegian Institute of Public Health (FHI), but has not been heard. He does not agree with how they have gathered information about Long Covid in reports policies have been based on...
  11. Kalliope

    News from Scandinavia

    Thank you so much for doing a summary, @mango !
  12. Kalliope

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Professor Wyller got an interview in the newspaper Aftenposten on Thursday which was shared by several other newspapers that are part of the same media organisation. Also The Norwegian News Agency had an article about the study shared the same day which was picked up by other news sites...
  13. Kalliope

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Self absorbed as we Norwegians tend to be; another article about this study is focusing on it being one of the world's most talked about paper. No critical questions from this news site either, and it's an academic one. Some of the high traffic to this paper is due to a youtube conspiracist who...
  14. Kalliope

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Sorry, I didn't express myself clear. What I meant was that the study seems to suggest higher education counted more in regards of ME prevalence than income. I interpreted it as those people might be better equipped in seeking information themselves, and navigate. But yes, I guess it could also...
  15. Kalliope

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Agree. And this paper seems to suggest that higher education counts more than higher income.
  16. Kalliope

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Yes, that reminded me also of Professor Jason et al's study of undiagnosed youths with ME/CFS: Most youth living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have not been diagnosed, according to a new prevalence study from researchers at DePaul University and Ann & Robert...
  17. Kalliope

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    This is a publication from the research project Tjenesten og MEg, a cooperation between the two research institutions Sintef and Fafo who are looking into ME patient's meeting with the public health care system. Thread about the research project here.
  18. Kalliope

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Now published - link here ******* Preprint Research Square Socioeconomic determinants of myalgic encephalomyelitis/chronic fatigue syndrome in Norway: a registry study Abstract Background: Previous research has shown that socioeconomic status (SES) is a strong predictor of chronic disease...
  19. Kalliope

    How much did the Covid-19 shielding policy cost in Wales? A Retrospective Cost analysis within the EVITE Immunity study, 2023, Sewell et al

    I also wouldn't be surprised if some of this is simply down to not being able to shield properly. How to deal with doctor's appointments, grocery shopping, help in the home, family members going to work/school/parties etc? Is it even possible to shield when the rest of the society has stopped...
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