Neurology, Neuroimmunology & Neuroinflammation
Deep Phenotyping of Neurologic Postacute Sequelae of SARS-CoV-2 Infection
Abstract
Background and Objectives SARS-CoV-2 infection has been associated with a syndrome of long-term neurologic sequelae that is poorly characterized. We aimed to...
JAMA How Primary Care Physicians Can Recognise and Treat Long COVID (includes interview with among others Lucinda Bateman)
Quote:
Experts interviewed for this story offered some basic guidance for primary care physicians:
Believe the patient. “Say it out loud. They need to hear it,” Palacio...
They also link to an article from one of the two research organisations behind this project, Fafo.
Ny forskning om ME-pasienters møte med tjenestene
google translation: New research on ME patients' encounter with health care services
quote:
A new research project shows that ME sufferers quite...
Great! A new publication from TjenestenogMEg - about ME patient's experiences with the health care system.
Here is a summary they've shared on Facebook.
Google translated:
Today, the second research article from the project was published. The article answers the Research Council's questions...
Tweet from Mike who has had lunch at Haukeland University Hospital today:
Also, 19th of April, he wrote an article about the situation for ME patients in Norway, interviewing Kristine Nilsen Oma and Luna Anette Løndal.
http://www.mikeseumarathons.eu/norway.html
Recovery Norge announces on their Facebook page that Henrik Vogt MD is quitting as leader of the organisation. Vogt founded the organisation in 2017 together with Thomas Overvik, who is also leaving the board. New leader is Hilde Søndrol who has been in the media several times with a recovery...
The Swedish newspaper Aftonbladet has an article about the study today. It's paywalled but title and the two first sentences are:
New study: Long Covid may be caused by lockdown
Long-term covid symptoms affected as many young people who had not had covid-19 as those who had been infected...
Simon Décary just announced on Twitter that he has tested positive:
It finally entered our household for the first time. Maintaining strict rules and masks allowed me to get to this point. I am extremely privileged for my awesome team that will take over most of my activities so that I can...
TV2 has an article today about Long Covid researcher Arne Søraas who has sent several reports of concern to the Norwegian Institute of Public Health (FHI), but has not been heard. He does not agree with how they have gathered information about Long Covid in reports policies have been based on...
Professor Wyller got an interview in the newspaper Aftenposten on Thursday which was shared by several other newspapers that are part of the same media organisation.
Also The Norwegian News Agency had an article about the study shared the same day which was picked up by other news sites...
Self absorbed as we Norwegians tend to be; another article about this study is focusing on it being one of the world's most talked about paper. No critical questions from this news site either, and it's an academic one.
Some of the high traffic to this paper is due to a youtube conspiracist who...
Sorry, I didn't express myself clear. What I meant was that the study seems to suggest higher education counted more in regards of ME prevalence than income. I interpreted it as those people might be better equipped in seeking information themselves, and navigate. But yes, I guess it could also...
Yes, that reminded me also of Professor Jason et al's study of undiagnosed youths with ME/CFS:
Most youth living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have not been diagnosed, according to a new prevalence study from researchers at DePaul University and Ann & Robert...
This is a publication from the research project Tjenesten og MEg, a cooperation between the two research institutions Sintef and Fafo who are looking into ME patient's meeting with the public health care system. Thread about the research project here.
Now published - link here
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Preprint
Research Square
Socioeconomic determinants of myalgic encephalomyelitis/chronic fatigue syndrome in Norway: a registry study
Abstract
Background: Previous research has shown that socioeconomic status (SES) is a strong predictor of chronic disease...
I also wouldn't be surprised if some of this is simply down to not being able to shield properly. How to deal with doctor's appointments, grocery shopping, help in the home, family members going to work/school/parties etc? Is it even possible to shield when the rest of the society has stopped...
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