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  1. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Getting back to the topic of this thread, has anyone had their two weeks later invitation to fill in the activities questionnaire again? I haven't and I'm sure it's more than 2 weeks.
  2. Trish

    A terrible academic paper has fueled renewed anti-vax journalism - it must be retracted, 2024, Pagel and McDonald

    Substack article by Christine Pagel Link to Substack post Guest post: A terrible academic paper has fueled renewed anti-vax journalism - it must be retracted A debunk and a plea for retraction from actuary Stuart McDonald _____________________________ The BMJ article criticised here is...
  3. Trish

    Preprint Persistent symptoms and clinical findings in adults with post-acute sequelae of COVID-19... in the second year after acute infection

    Not a good advertisement for rehab. They should have been able to work out whether the ones who had rehab were improved or worse after rehab, and whether their status before rehab was worse than those who didn't undergo rehab. In other words, surely it's not good enought to just dismiss this...
  4. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Some of us in our 70's have fitbits and smartphones too. Though I confess I probably wouldn't if I didn't have my daughter in her 40's living with me who does all the tedious stuff of buying them for herself, learning how to use them, and then helping me with mine. I think it's not a matter of...
  5. Trish

    'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths]

    For the record, here's what it says on the website: https://www.gold.ac.uk/careers/work-placements-and-internships/goldsmiths-internships/grip/ ______________ GRIP: Research internships Develop your research skills and your CV over the summer. GRIP is a programme that gives undergraduates six...
  6. Trish

    'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths]

    Oh dear. This is dreadful. It would indeed be interesting to know who is behind it. Given some people like Parker and Landmark seek to legitamise their quackery with academic qualifications and laughably poor quality research, I'm guessing it could be Agle herself or someone whose treatment she...
  7. Trish

    Chronic fatigue syndrome post-COVID-19: triple-blind randomised clinical trial of Astragalus root extract 2024 Banihashemi et al

    Reminded me of Alice in Wonderland and the bottle labelled 'Drink me'.
  8. Trish

    Loss of smell and taste

    If you're doing this indoors, maybe there's a problem of build up of cinnamon smell molecules in the air around you.
  9. Trish

    Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations

    It's good that the point about cumulative effect is raised, and the question of how we decide between the options in FUNCAP. My idea on this thread is that we compare which of these most successfully captures the experience of our functional limitations, including the slow recovery and...
  10. Trish

    (Austria) Medical University of Graz launches initiative for ME/CFS training

    Does it say what the treatment they use is?
  11. Trish

    Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations

    That's interesting and worth saying. I also don't do lots of the things on the list because of pacing, but to me that means I should rate them as having a serious impact. I do get the bit about cumulative activity. Everything contributes to cumulative effects, so the scoring can only ever be...
  12. Trish

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    By email: Dear participant, We are excited to announce that we are now uploading the complete series of UniteToFight2024 conference videos to our YouTube channel! Relive the insightful sessions and catch any moments you might have missed, all at your convenience. Our YouTube channel is online...
  13. Trish

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    The videos of the Unite to Fight Conference are now available on YouTube. https://www.youtube.com/@UniteToFight2024
  14. Trish

    Webinar 4th June 2024: Royal College of Physicians Edinburgh RCPE: ME/CFS and Long COVID

    I had the impression it was only open to clinicians.
  15. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I've been watching some cycling road racing. The professional cyclists are monitored continuously for heart rate, speed, effort, etc. They clearly find them accurate enough. Why can't we? Coming back to this discussion is like stepping back 50 years.
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