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RD talks about Abilify here...sounds like they are onto something. is this video posted somewhere else?

Sorry it didn’t last....

Yeah just saw that. Dr. Mignot identified genetic factors predisposing to human narcolepsy, such as human leukocyte antigenHLA DQB1*06:02 and other genes[8] and isolated the gene causing the methylopathy Autosomal Dominant Cerebelar Ataxia, Deafness and Narcolepsy (ADCA-DN), DNMT1.[9]

@Kalliope Thanks for posting--this presentation will be in Norwegian?

Moved from https://www.s4me.info/threads/fraudlisting-com-a-project-to-keep-track-of-quack-treatments-for-me.20408/ @rvallee Apparently there is a really effective treatment for Canadians! From comment section for this article...

This link works.

The open house is really long (3 hours)....lot of info...hopefully they can make a summary. Or maybe someone from here with minimal neuroinflamation could take a stab.....

$1 million is great. Another $200 million or so would be even better.

There’s an overlap because they are the same thing!

https://www.washingtonpost.com/sports/2021/04/19/athletes-long-haul-covid-justin-foster/ Slowed and sidelined, some athletes struggle to return from long-haul covid

It’s amazing how (intellectually) productive a lot of the severe MECFS patients are. 25 page article by Whitney—another guy wrote a book that was published. I am not severe, but I could not write a book or long article, barely less read one.

I think this point might be important....the responders might have been patients with the 2 HLA risk alleles--what about the rest of us??

I thought you said it doesn't really reduce non-malignant plasma cells......

https://www.healthrising.org/blog/2021/04/22/chronic-fatigue-brain-stimulation-clinical-trial/ Novel Chronic Fatigue Syndrome (ME/CFS) Brain Stimulation Clinical Trial Begins

Thanks—Did he say anything about cyclophosphamide/further trials?

I listened to the Rep. Raskin talk today—glad he is still an advocate. The whole segment was recorded and will be posted on YT. I think they said that about 1000 people registered to do the lobbying tomorrow—that’s encouraging.