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Sad to hear.

Nope. Not that I've seen.

I remember this questioning of @Action for M.E. from five years ago: Peter Kemp‎ to Action for M.E. 30 December 2012 · 2nd request. Dear AfME, the PACE Trial researchers state: "Actigraphy is a measure of physical activity, measured by a wrist watch sized accelerometer, worn around the ankle...

I thought I'd post some slightly OT notes I have relating to PACE dropping actometers: Discussion on the need for more objective outcomes (following on from the previous meeting where they also discussed the impossibility of blinding) - from PACE Trial Joint meeting of the Trial Steering...

Sounds very positive from Monaghan. Great to have an MP seeming to take a real interest. I can worry that it's a mistake to put any emphasis on concerns about the PACE researchers starting from a hypothesis about CFS being a psychological disorder, as it's easy for that to lead to distracting...

I got the impression that Jen was really pissed off with this one person, and maybe was trying to get at them by emphasising the problems they had caused, but it came across as a bit weird and easy to misinterpret (which I think some people have done). To me it sounds like she has had some...

This video has been a tab in my browser since it first came out. I've never got around to watching it. I've now got about 300 tabs, and really need to start closing more of them.

Thanks Lucibee. It's also odd how in this they were talking about the rush to get baseline actimeter data ready for publication... nearly a decade later and it has still not been published.

Also - it's a bit odd to suggest that actometers aren't suitable outcome measures because patients' activity is already so high at baseline, when CBT and GET both aim to improve activity levels. Chalder and Wessely have said: "At the heart of CBT is a behavioural approach to the impairment of...

My hairs went up on reading the actigraphy stuff. Not only were they aware of the null results for actigraphy when they dropped it as a PACE outcome, but they were explicitly citing this data as part of their reason for dropping it. Wow. I think it's important to avoid being too critical about...

Bump, in case you haven;t found someone yet.

It's something I keep forgetting about with Lloyd, but whenever I remember it I screwface. He needs to start writing his letters of apology!

Only 30 days? Didn't we have longer last time? Why do they want the drama?! Pretty good timing for me though - I was just thinking I've got some spare money and nothing that I need to buy. Some intrepid journalism seems a better purchase than stocking up on vacuum cleaner bags. Hope the fund...

re interviewing Lloyd... hoping @dave30th remembered to quiz him on this BS: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2796.2011.02468.x https://onlinelibrary.wiley.com/doi/full/10.1111/joim.12074

But if patients were to push for the use of pharmacological interventions with a poor evidence base that would undermine criticisms of the way the CBT/GET have been promoted by doctors despite their poor evidence base. I think that if we ask for treatments which lack good evidence of efficacy...

I found this REF2014 document: http://medicine.cf.ac.uk/media/filer_public/5f/6e/5f6e925e-1d64-489a-8af8-7a2e69ac5689/navigable_pdf_for_ref_14_uoa4_impact_case_studies.pdf It doesn't give a breakdown on individual projects, but as results for Oxford (p5) and KCL (p8) indicate that no submission...

http://www.virology.ws/2018/03/26/trial-by-error-yet-another-go-round-with-bmj-open/ Trish Groves and the BMJ have such an appalling record on CFS. And it's continuing here.

Oops - I'm sure I went read it twice to check before posting as well! Thanks.

@Woolie - you quotes from Sharpe's COI statement there, but said it was White's. I think that he was asserting that he has a magic brain.

I keep forgetting how effective modesty, caution and politeness are in debate. This has made me think that I should really just completely re-draft an e-mail I've been gradually editing to be less and less irate and self-righteous. So hard to get the right tone when dealing with these $%&#ers!