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New today... a short teaser from Tuller on next weeks blog: http://www.virology.ws/2017/12/27/trial-by-error-a-sneak-preview-of-next-weeks-post/

To me, it looks like Fluks is posting some stuff that is too odd to try to explain.

I'd be amazed if the training course was discussing the problems with it. Sounds bad to me.

When Fluks came up in another thread here I did a google, and found some very odd stuff from him, eg: https://groups.google.com/forum/#!topic/alt.med.cfs/xMjK9GbxzVM It wouldn't surprise me if some universities were distancing themselves from Coyne after some of his comments on social media...

I've never known what some of these things mean. My sleep doesn't leaving me feeling recovered and bounding with energy, but it's much more refreshing than no sleep. It's like some criteria requiring that symptoms are not relieved by rest... but mine partially are, and this seems to be the...

Thanks Indigophoton. So it sounds like Ron just doesn't think that they're ready to publish something yet. There were some bits about criticism in there that seemed a bit odd to me. 'Given the power to criticize'? Who should I request that power from? As someone who thinks it can be quite...

Oh... I thought the plan was that they'd been putting info on methods up on their website, along with their results. I really haven't been following their work though. If they're just announcing things at conferences without backing stuff up anywhere, that is more of a problem. There are such...

There are also problems with the systems around publishing in journals, and I can see advantages to just releasing methods and results as they become available for others to review/assess/comment upon. My understanding is that this is what they've been doing (although I've not been keeping an...

LOL - that would be super tenuous! Hopefully we'll get more from them on the record. I expect that they'll just try to be utterly evasive in the expectation that no-one with power will care, and those who do pay attention couldn't think less of them anyway.

The various biopsychosocial models floating around often seem so vaguely defined that it can be hard to say they have clear contradictions!

LOL.

Tuller reported Crawley having some direct involvement in the assessment of participants anyway: http://www.virology.ws/2017/08/28/trial-by-error-no-ethical-review-of-crawley-school-absence-study/

I think that some of the criticism here is too strong, especially when we haven't seen what from the researchers led to this headline. It's good to be critical of these sorts of hyped stories, but it's not like they're encouraging patients to engage in a challenging or risky treatment based on...

It's hard to say from that, but it looks like it could have implications for your request for anonymised data. The trouble is, it makes no sense. How can data be collected anonymously when it involved a clinical assessment? Data from this personal assessments can be anonymised, but it clearly...

That's pretty annoying. How are they claiming that research project was a 'service evaluation'? There was no service to evaluate outside of the research project. "How should journals respond to blog posts that they feel portray them unfairly and are damaging to the publisher's reputation?"...

I feel like @Adrian is onto something with that point about power calculations and the change from a feasibility trial to a full trial, but I don't have a good enough understanding of these things, or what is expected, to say for sure. It's too late to find out now, but 'bump' for tomorrow.

http://www.virology.ws/2017/12/23/trial-by-error-bristols-complaint-to-berkeley/ Christmas Eve for me... can't think of a better way to spend it that reading about a failed attempt by Bristol Uni to apply pressure on Berkeley to shut Tuller up. A shame that we don't get to see the letter they...

I'd have hope they'd have been willing to make that adjustment without needing specific guidelines on it. I'm not aware of any specific documents that would be of use here I'm afraid, but this isn't an area I know much about. Hopefully your friend will be able to get out of hospital soon.

Seems doubtful that there will be results strong enough to justify the headline claiming that they have a test for CFS. Given all the problems with even saying what 'CFS' is, that would be a pretty amazing breakthrough. Given the history of misleading headlines around CFS, I'm not going to get...

These researchers have done other poor work in the past. Not sure I really fancy reading this one.