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  1. Esther12

    Unofficial blog looking at OMF's Severely Ill Big Data study so far

    Thanks. Do you have any idea what sort of results we'd get for the same test if it was applied to people with MS, depression, healthy controls, etc?
  2. Esther12

    Dec 13-14, 2017 | US Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting

    No worries - it can all blur together. Thanks for the samples you did provide.
  3. Esther12

    Dec 13-14, 2017 | US Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting

    Thanks Sasha. Can you remember how they responded to that?
  4. Esther12

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    I've noticed MEA seem to have not been promoting Tuller's recent work on social media in the way they used to. That seems worrying.
  5. Esther12

    UK Biobank doing an Ask Me Anything thread this Thursday, pre-event thread.

    I just moved my long and rambling one over before seeing how this was worknig, that should keep them going for a while!
  6. Esther12

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    I'm sure I should be able to put this more concisely: I've thought that a good way of getting more CFS studies done, would be to have researchers for other conditions make use of 'CFS' as an ill-health control, where patients were likely to have a range of different causes of their own...
  7. Esther12

    Toni Bernhard - How to Respond to Unkind Remarks When You’re Chronically Ill

    I keep wishing Toni Bernhard were to write something that touched on the problems with PACE-type research, and how that relates to attitudes to ill-health. It does seem relevant to some of her work, and it would be helpful for helping make another group of people aware of the problems there.
  8. Esther12

    Frank Twisk interviews David Tuller

    Thanks. Marking this for tomorrow... only twenty minutes.
  9. Esther12

    Unofficial blog looking at OMF's Severely Ill Big Data study so far

    I could well be misunderstanding something, but this was the figure I found it hard to assess the significance of: This is all new to new to me, and I don't know how to start to assess whether these findings are likley to be important. @paolo - are you able to help me out (no worries if it's...
  10. Esther12

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    Yup, she was really surprised that when she switched outcomes half-way through she could turn a null result into a positive one with an excited press release... she'll love that Tuller's helped explain this confusing state of affairs to everyone!
  11. Esther12

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    Thanks once again to Tuller for all his work. That was epic. When reading that I really felt like this study has the hallmarks of the sort of 'simple' junk-science that should attract wider attention from people who don't care about CFS? Despite it's length, there were still bits that were so...
  12. Esther12

    Lecture by Emily Beardall of Action for ME

    Analysis 1.18 of the Larun Cochrane review for exercise therapy reported no significant difference, but I haven't gone through looking at the details: Edit - anyone know why Wearden 1998 has more weight than Wearden 2010 in the above graph?
  13. Esther12

    [Science] Researcher in Swedish fraud case speaks out: ‘I’m very disappointed by my colleague’

    This interview is so annoying it's funny. http://www.sciencemag.org/news/2017/12/researcher-swedish-fraud-case-speaks-out-i-m-very-disappointed-my-colleague With some authority figures responding to PACE, I really can't tell if they're playing dumb to avoid difficult questions, or if they're...
  14. Esther12

    Small-World Network Analysis of Cortical Connectivity in Chronic Fatigue Syndrome Using Quantitative EEG, 2017, Zinn, Zinn & Jason

    Great, now I've got Disney World's 'small, small world' song going around my head, so feeling extra cognitively impaired.
  15. Esther12

    Lecture by Emily Beardall of Action for ME

    If pointing to the PACE LTFU data, which showed GET making no overall difference for self-reported outcomes, then if assuming GET is harmful to some, presumably it's beneficial to some too? I've not watched this lecture yet, and do not trust AfME to do a good job of picking apart the spun...
  16. Esther12

    UK Biobank doing an Ask Me Anything thread this Thursday, pre-event thread.

    I'm sure I should be able to put this more concisely: I've thought that a good way of getting more CFS studies done, would be to have researchers for other conditions make use of 'CFS' as an ill-health control, where patients were likely to have a range of different causes of their own...
  17. Esther12

    Unofficial blog looking at OMF's Severely Ill Big Data study so far

    Thanks. Does anyone know how figure 5 was made, how this compares to (for example) healthy controls, or how different groups with different illnesses compare to one another?
  18. Esther12

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Just about everything I read from Gerada makes me cringe. I don't think that she'll ever be able to understand the harm she's done.
  19. Esther12

    Huntington’s breakthrough may stop disease

    Fingers crossed it all work out for them. That would be amazing.
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