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I don't remember how I ended up on their site, but thought I'd let people know in case there's anyone here who might be interested: http://www.dorsetmesupport.org.uk/urgent-appeal-for-new-trustees/ From the looks of things, they may not currently be the most sceptical of rigorous of groups, but...

I don't know about their research, but they sound good on patient engagement, which is important.

What argument? I think I've missed something. I agree that their campaign seems designed to promote prejudice.

There are millions of ill people who have good reason to be angry with Crawley, etc. It's only takes a couple of idiots to send e-mails that can then be used to try to discredit everyone else, and it wouldn't surprise me if there were a couple of idiots out there. That she's having to use the...

I laughed at this headline too. No, no, no. It's not about looking at the details and critically assessing the evidence, but realising that the BBC is an independent and trustworthy source, and that those criticising the BBC have dangerous agendas. Worryingly, some young people no longer...

Someone put the whole thing on-line here: http://pw.me.uk/EC/20130505_Sunday_Times.pdf He's said a few things that indicate he's lazy enough to think trusting Wessely is a sign of sophistication...

When a condition is described as 'complex' it's often seems to be mean people have no idea what they're talking about.

I hadn't noticed that. It also seems much better when in the UK media, as my standards are lower!

I don't think we should jump to assuming that he was lying there, and other people made mistakes too. When there are a lot of details to remember, people can make slips. There are definitely things about those minutes which worry me though. Yup, it falls perfectly in-line with their...

This article is widely syndicated, so goes beyond just the NYT. eg, it's now in the UK's Independent: http://www.independent.co.uk/life-style/health-and-families/new-recognition-for-chronic-fatigue-a8081751.html

I find it so hard to judge comments from UK Establishment figures, who can be pretty good at implying more than they say, and doing so in a way which is tailored to their audience. Could be worth looking at how the back pain guidelines were revised? There's a lot of quackery around back pain...

LOL at: I was surprised that there weren't any more aggressive e-mails in there tbh, especially after Crawley's 'libellous blogs' accusation. Good not to give them any ammo to use against us, but still some impressive restraint there! The only thing I thought could be a problem is if people...

Is it too late for S4ME to register as a stakeholder?

I was hoping for a nice simple sub-group that could be easily and objectively identified and then treated, but this sounds like the sort of thing where legitimate and dodgy medicine could end up being a bit mixed up and difficult to distinguish. Thanks for all the tips, I'll pass them on.

I only had a very quick look at this, and thought I'd post as it seemed odd that there was no declared COI from White when just a few months earlier Swiss Re were describing his as one of their Chief Medical Officers. http://bmjopen.bmj.com/content/7/11/e015860 I first opened it to see how...

Thanks Ryan. Sounds like the sort of thing where we don't yet have great testing (which might explain why I was having trouble finding details on what tests were needed), so presumably there's also a problem that people might end up with inappropriate treatment. I don't really know anything...

Thanks Gingergrrl. Will pass it on.

I was just asked about MCAS by someone in the UK with EDS/PoTS, and how it is best to start any investigation of possible mast cell issues. Is there any basic/widely recognised test that they could get on the NHS? Should I advise them to try to find a specialist? That doesn't sound good! I...

They say: http://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-committee/inquiries/parliament-2017/research-integrity-17-19/

Sile Lane from Sense About Science is another dodgy one too. Looks like it could be dominated by those who merely present as being committed to research integrity.