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I just skimmed through this, thinking it might be a bit interesting on why there seems to be a mix of null and positive findings for autonomic issues in CFS. It looks like it was comparing those who fulfilled criteria for CFS, with those suspected to have CFS but did not fulfill the criteria...

Welcome to the forum @Never Give Up !

I agree. I thought @erin 's post was not at all fair. Lots of people with a range of different levels and types of health problems end up with a diagnosis of ME, and it's good to try to be supportive of all. It's good to challenge misinformation, but that should also be done cautiously and with...

I think that was just for the PACE special issue.

I wanted the HPV vaccine but was told I was too old.

Welcome to the forum Mike, and thanks for all your work.

Aside from the fact that the organisation clearly does not respect their own professed standards.

Bristol Uni PR on the TEDx talk. http://www.bristol.ac.uk/ccah/news/2017/esther-crawley-tedx.html

I was just looking at the Nature press release for this: http://www.nature.com/press_releases/john-maddox-2017.html Some funny bits:

Best wishes... pleased to hear about your fun, sorry about your benefits pain.

Sorry if I sounded overly critical! I'd meant to be making general points, but looking back I can see that it could read like more of an attack on what you'd said than I intended. I know that there had been medical journal papers raising concern about links between the HPV vaccine and CFS/PoTS...

I fear that you may not be seen as being part of their 'in-group'.

I think that it would be a really serious mistake to tie concerns about CFS research to concerns about vaccinations without there being good evidence of vaccination causing problems. If patients ever go beyond the evidence in their criticism of CBT/GET, it can end up being used against all...

I wonder if anyone from Sense About Science fancies trying to defend the SMILE trial? The judging panel consisted of Professor Colin Blakemore FRS, Tracey Brown OBE (Sense about Science), Sir Philip Campbell PhD (Nature) Lord Rees of Ludlow OM FRS, Natasha Loder (the Economist). The judges sat...

Sounds positive. Thanks for sharing.

The reply from Bristol says: How does that make sense in response to Tuller's e-mail?: http://www.virology.ws/2017/11/22/trial-by-error-hey-bristol-where-is-my-cease-and-desist-letter/ It wasn't he who created this strange term of "a ‘cease and desist’ letter". He wanted Bristol to explain...

I got sent this video summary via @Simon M http://www.nejm.org/do/10.1056/NEJMdo005225/full/?query=featured_mhome

I think it was more likely down to thoughtlessness than any sort of corruption. Crawley was medical advisor for AYME, which was run by the terrifyingly stupid Mary Jane-Willows. I can easily see MJW being impressed by a few positive anecdotes, thinking that it would be good to run a trial on LP...

What is it with these uni's legal departments? This response reminds me of the misguided letter sent to Coyne: https://web.archive.org/web/20160314024024/https://dl.dropboxusercontent.com/u/23608059/PACE%20F325-15%20-%20Prof.%20James%20Coyne%20-%20Response-2.pdf I wonder if this is something...

This is not a cheering point... but some slow genuine progress would be better than most of what we've had over the last few decades!