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  1. Esther12

    Mike's EU Marathons

    Thanks Andy. And of course, thanks to Mike too. It's really been a marathon of marathons, and it's really impressive to see how this campaign has also been used to successfully generate decent media coverage too. Great work!
  2. Esther12

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Thanks for letting us know. Downloaded a copy now. Has anyone got a reply from TEDx Bristol about Crawley misrepresenting that slide? Not a good look if they're more concerned about protecting their copy-right than the accuracy of the claims made in their talks? Although... TEDx was in the...
  3. Esther12

    Primer for family, friends and care providers - WIKIE MEpedia

    Thanks. I feel like I've not used MEpedia much until recently, and there's loads of good articles on there now. I just started reading that, and wondered if it's a mistake to have the talk about what ME/CFS is not so early in the article, or to talk about the 'illness beliefs' model as being...
  4. Esther12

    Junk science publisher ordered to stop ‘deceptive practices’

    Someone else pointed out a few years ago that a lot of articles in the Journal of Psychosomatic Research seemed to have superfluous references of work by the journal's editor.
  5. Esther12

    Association Between Risk-of-Bias Assessments and Results of Randomized Trials in Cochrane Reviews (2017) Sterne [SMILE, etc on lack of blinding prob]

    Looks open access: https://academic.oup.com/aje/advance-article/doi/10.1093/aje/kwx344/4604571 Association Between Risk-of-Bias Assessments and Results of Randomized Trials in Cochrane Reviews: the ROBES Meta-Epidemiologic Study. Savovic J, Turner RM, Mawdsley D, Jones HE, Beynon R, Higgins...
  6. Esther12

    HPV vaccination and risk of ME/CFS

    Pleased to hear it was of some use. Just to be clear, there's no real evidence of the HPV vaccine leading to even just a slightly earlier occurrence of CFS in predisposed individuals... but it seems that something like that would be harder to pick up in a study like this.
  7. Esther12

    HPV vaccination and risk of ME/CFS

    Hi Hedgehog. This isn't an area I know a lot about, but I thought I'd share my views anyway. No single study can be definitive, but the discussions I've read about this makes it sound as if this was a decently done study (I've skimmed it and it did seem to do a good job on indicating HPV...
  8. Esther12

    Forward ME Group Minutes – 17th October 2017

    That summary from them makes it seem odd that there's no mention of Davie being asked about SMILE and LP.
  9. Esther12

    ‘Healthy Privilege’ – when you just can’t imagine being sick

    I think that there's something to that, but that it's also true that we all tend to be thoughtless about the injustices faced by others, and that plays a role in generating further injustice. re understanding ill-health: when I come down with a cold, or some other short term illness, I find...
  10. Esther12

    Homeopathy Is a Bitter Sugar Pill

    Still... it's likely to be less harmful than a lot of other speculative treatments with no evidence of efficacy that are promoted to people.
  11. Esther12

    The UK ME/CFS Biobank Christmas 2017 Appeal

    You are brilliant! - I had totally forgotten about this.
  12. Esther12

    Condition among athletes with similarities to ME?

    Body-builders have long spoken about 'over-training syndrome', early signs of it, and how to avoid it.
  13. Esther12

    Forward ME Group Minutes – 17th October 2017

    There have been some really annoying recent tweets from that Max Davie guy. The sort of ill-informed pseudo-sophistication I'm not used to seeing post-Tuller. Yuck.
  14. Esther12

    Forward ME Group Minutes – 17th October 2017

    Sonya does the CMRC ones which never seem to address anything much. Max Davie does seem to have said some really ill-informed things in the past, and from the minutes, it sounded as if he wasn't saying much.
  15. Esther12

    MRC invites proposals CFS and Myalgic Encephalomyelitis Aug 2017

    Hmmm... she's not on this list, and I'm sure I remember something about her leaving (although my memory can let me down): http://www.meassociation.org.uk/research/cfsme-research-collaborative/cmrc-executive-committee-becoming-a-member/ Just looking at the October 2017 minutes... this looks...
  16. Esther12

    MRC invites proposals CFS and Myalgic Encephalomyelitis Aug 2017

    I thought that she had stepped down from the CMRC because she was moving on to other areas? From what we've seen from the MRC with regards to PACE, it's hard to know whether this money is likely to be a good or bad thing.
  17. Esther12

    UK: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis National Outcomes Database

    I didn't know that the NOD had stopped. The results seemed pretty poor - maybe it was seen as embarrassing? When Simon Collin left MEGA it was said that he was also leaving Bristol.
  18. Esther12

    Unrest - reviews and general articles

    From Bafta: Unrest | Film Q&A Director Jennifer Brea + Producer Lindsey Dryden explain the journey Jennifer's illness took her on to create her documentary Unrest...
  19. Esther12

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    There does seem to be a growing expectation that researchers should do 'public engagement' type stuff. That must not be fun if your work is so poor that a large number of people are able to pick it apart in front of you. Please cease and desist the harassing questioning of research?!
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