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  1. TiredSam

    Letter from parents of children with ME to paediatricians in the UK

    I must say, anything I receive anonymously goes straight into the bin.
  2. TiredSam

    Letter from parents of children with ME to paediatricians in the UK

    Without commenting on the letter itself, I'm not quite sure I agree with this point. Paediatricians, doctors and even researchers often seem as likely to respond positively to dodgy research as sufferers and senders of letters themselves. Following my appointment and diagnosis at the university...
  3. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Blame the patient. If that doesn't work, blame the therapist. Blame the critics. Blame everybody except the trial authors, whose intuitive wisdom is beyond question.
  4. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    It continues ... Note that Sharpe is posting at ten past midnight.
  5. TiredSam

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    Wow, you've got a long memory ... Funnily enough when I read your posts that's the voice I always hear you speaking in too ... what are the chances? As long as it's Les Dawson you should be ok.
  6. TiredSam

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    Super, we'll have a look at the data from your trials please. The virology blog is a very available platform and has been inviting you to get the evidence out there and clear up a few misunderstandings for quite some time. And while you're at it, ask your mates from the PACE trial to get the...
  7. TiredSam

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    "... that is our patients" is a phrase that cannot correctly exist in the English language, especially in a sentence about summarizing complicated messages. Fish in a barrel. Can't be bothered.
  8. TiredSam

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    and threaten to have them withdrawn and the children sectioned if everybody doesn't do what Esther says.
  9. TiredSam

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    Me too. When I'm not fit for anything else, I can lie on my sofa doing chess puzzles on my smartphone for hours. Haven't got a clue about the name of that guy on the telly I watch every week though, or what I did last weekend, or why I just thought about standing up.
  10. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Have they co-authored a paper with Chalder?
  11. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Seems perfectly consistent and logical to me. What she's saying is that ME sufferers should always listen to experts but never be allowed to listen to themselves.
  12. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    I must admit when I read about Merryn Crofts I was expecting Vogt to crawl out from under his stone, given his previous. Excellent and restrained response from Homeslice.
  13. TiredSam

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    My favourite is a twack of ducks, closely followed by a sord of ducks. https://www.collectivenounslist.com/ducks
  14. TiredSam

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    At the university hospital in Berlin they gave me a 4-page sheet of advice on supplements, symptom management etc that "some people have found helpful", with references to the original research. The Dr also wanted to talk to me about activity management and pacing, but I knew it all already. He...
  15. TiredSam

    Janet Dafoe - The Whitney Plea

    For me it doesn't matter whether it's Christian or some other kind of spiritual or just begging - it's not a gesture I would ever use in any context (unless momentarily when clapping my hands to express appreciation of a particularly good performance) and I don't want it used on my behalf. Agreed.
  16. TiredSam

    News from Scandinavia

    I made the mistake of dividing 5,233,000 by 300,000. The result was 1/17, which I mistakenly took to be 17%. As I have recently espoused on percentages and fractions on another thread, I am thoroughly mortified at having made such an elementary mistake.
  17. TiredSam

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Until now the horse has been too easily distracted by the loud quacking of the ducks who seem to have taken over the village pond. Ideally the ducks should be removed as in such numbers they are a pest and a nuisance. Failing that, we have to educate the horse to accept the fact that although...
  18. TiredSam

    News from Scandinavia

    Oh bugger how embarrassing my maths is crap. Don't tell anybody. Especially not anyone involved in the 2/3 - 66.6% debacle. Especially not @Alvin.
  19. TiredSam

    News from Scandinavia

    Wow, that's 17% of the population! And if some of them talk to others who didn't see it ... Maybe someone should suggest to the managers of Norway's sovereign wealth fund (currently worth $1 trillion for those lucky oil-rich Norweigians) that investment in ME research is going to be the next...
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