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  1. NelliePledge

    Press Release: France ASFC to clinically evaluate ME/CFS pathogenesis model by Bio-Modeling Systems

    possibly, I suspect the translation from French hasnt helped with clarity
  2. NelliePledge

    A general thread on the PACE trial!

    From page 44 of GET therapists manual: Long term goals (Six months or longer) These may be functional activities, hobbies, or an exercise that the participant would like to do. It may be an activity they used to enjoy, or a new activity. For example: • Walking to the shops three times a week. •...
  3. NelliePledge

    A Girl Behind Dark Glasses - Jessica Taylor-Bearman

    Steve Topple again :thumbup:
  4. NelliePledge

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    He has done ok because he managed to weather the attempts to undermine him
  5. NelliePledge

    The Lancet: UK life science research: time to burst the biomedical bubble

    the behaviour change industry ie CBT industry all in all its just another brick in the wall
  6. NelliePledge

    Press Release: France ASFC to clinically evaluate ME/CFS pathogenesis model by Bio-Modeling Systems

    @mariovitali just tagging you in case this is relevant
  7. NelliePledge

    Press Release: France ASFC to clinically evaluate ME/CFS pathogenesis model by Bio-Modeling Systems

    picked this up from facebook post by International Alliance for ME http://www.bmsystems.net/download/press-release-bmsystems-Chronic-Fatigue-Syndrome-validation-english-CS-ASFC-17072018.pdf Paris, France July 17, 2018: The Scientific Committee of the French Chronic Fatigue Syndrome Association...
  8. NelliePledge

    #MEAction recruiting in UK and US

    just received this email We have some exciting news to share. Thanks to everyone’s hard work and efforts, we are able to expand our team! We haven’t fully funded the UK position (if you want to help us get to our goal, go here), but there is too much happening to wait! We will be hiring a UK...
  9. NelliePledge

    New Liberty Protection Safeguards will prioritise timely care of the vulnerable - Simon Wessely

    its not just physically restrain people - the chemical cosh - which I saw applied to parent with dementia when they were still able to walk and which rendered them virtually immobile. Im sympathetic to folks having to cope with wandering and challenging behaviour but there's a difference...
  10. NelliePledge

    “Potentially harmful and old-fashioned chronic fatigue treatments under review” ABC Australia article and TV program

    i hope the report turns out ok - all the best Aussies on this article its like the BBC coverage earlier this year the good thing is to have won on the headline and Heidi's comments come first also Lloyd has had to admit it does harm people - hopefully that will make some people think quote...
  11. NelliePledge

    Checking our blind spots: current status of research evidence summaries in ME/CFS (2018) Davenport et al

    apologies for ignorant question is there some significance of this being an editorial?
  12. NelliePledge

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    yes exactly - what we call "BPS proponents" have a track record of appropriating terminology and twisting it to their own meaning - either it has to be dropped or people like Tina need to actively reclaim it and refute the misuse
  13. NelliePledge

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    I was tempted to go on and post a question whether Tina had actually read the paper. I think it sets out clearly what BPS was supposed to be. I’m wondering if Tina believes she has unhelpful illness beliefs that are perpetuating her CFS
  14. NelliePledge

    IAPT under the microscope, 2018, Marks

    bet its that pile of poo Chalder Fatigue scale they use
  15. NelliePledge

    David Tuller: Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial

    parts of my body would start speaking to Parker but it wouldnt be repeatable in polite society
  16. NelliePledge

    Guided graded exercise self-help for chronic fatigue syndrome: Patient experiences and perceptions, 2018, Cheshire et al

    would there be a peer review process if it has been published by the university rather than a journal?
  17. NelliePledge

    Ron Davis's trypanosome 'signature' finding (IIMER conference 2018)

    found this by googling trypanosome Sri Lanka - only tropical country I'd visited before getting ME http://journals.plos.org/plosntds/article?id=10.1371/journal.pntd.0002256 PLOS neglected tropical diseases Atypical Human Infections by Animal Trypanosomes Philippe Truc , Philippe Büscher...
  18. NelliePledge

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    one comment on the MEA summary page One thought on “MEA Summary Review: ME/CFS and the Biopsychosocial Model – By Dr Keith Geraghty | 29 June 2018” tinalouiseJuly 3, 2018 at 2:57 pm I have CFS/ME. I am an occupational therapist primarily working with people who have had a stroke or traumatic...
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