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http://www.meassociation.org.uk/2018/06/mea-summary-review-me-cfs-and-the-biopsychosocial-model-by-dr-keith-geraghty-29-june-2018/ MEA page with a summary by Keith Geraghty Dr Geraghty kindly agreed to provide a summary explanation of what his latest research discovered: “ME/CFS patients...

yes I think we should start referring to CBT providers as "the CBT industry" it is equivalent to pharma.

I’m concerned that anitryptiline is the standard medication supposedly to help people with ME with pain and sleep issues the only reason it helps a bit with sleep is it makes you so drowsy and zonked and it has a bad hangover effect. Is there any actual evidence for its use in people with ME if...

i doubt the MSPs are going to be impressed by the statement from Lothian. they arent setting out what their disagreement is so it just looks like stonewalling. like Lothian are saying to the MSPs 'what are you doing looking into this you idiots - nothing to see here '

i did have a mini move experience as nearly all my furniture and stuff from downstairs was moved out for a few months while the work happened. Like you I had removal men packing everything up. but as my insurance company decided it wasnt their liability and I had to pay for the final month...

Hi @Dechi I’ve been going through similar experience with my house I had some damp and floorboards and joist sorted in February and redecorating and new flooring March April. I’m in the process of sorting out all my stuff in my bedroom to clear it out so the room can be refurbed while I’m away...

im helped in spotting when my energy is going too low and I should stop as I start getting a croaky throat which I dont have when energy is at 'my normal' not always possible to stop though eg yesterday was at local ME group get together and started croaking after about an hour still had to...

nice summary of areas for improvement thanks @Medfeb

surprisingly they did @Sly Saint https://www.actionforme.org.uk/news/%E2%80%8Baction-for-m.e.-to-sign-open-letter-to-lancet/

just snorted my cuppa again - JE shredding the psychiatric establishment :rofl:

He believes his own publicity He’s got the biggest importance, huge

Was it when you moved to the USA that you learned about ME and became interested in working in the field or were you aware of it when you were in the UK? What are your views on the current situation in the UK?

obviously I see the issue with people with very severe ME and low BMI due to difficulty taking in nutrients I dont fit with low BMI I am at the other end of the spectrum and there are a few of us on the thread about how to lose weight in similar boat, probably not as fat as me though People I...

couldnt we have stages for severity?

I might use something cruder than bloody......

ah ok I did spot their name/logo

ah interesting I've not had an email and on the document it doesnt have MEAction name & logo in the list of supporters maybe @chicaguapa or @adambeyoncelowe know if MEAction are involved in this

sorry thought I had posted link to the thread its being discussed on https://www.s4me.info/threads/the-home-study-michael-sharpe-s-cbt-for-the-elderly.2499/#post-45733

https://oxfordpsychologicalmedicine.org/research/thehomestudy/

definitely that would be a good approach I imagine there will be push back and some Webdog doggedness will be required