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think @Keela Too and @MeSci are right the person writing this is trying to weasel round it and in doing so has been very misleading. However given that MEResearch have now posted about it the Dept of Health will have to clarify. If they clarify that the Yellow Card scheme is not available...

absolutely the form isnt properly set up to do it but if people try to use it and contact MHRA with questions/complaints they will have to adapt it. the pressure has forced this change - it is important that the scheme is now used for reports about GET/CBT otherwise it will become another way...

this is really good dont want to put a dampener but if theres an election as seems increasingly likely that brings the session to a halt and everything will have to pick up again with the new cohort of MPs and we will all be praying very hard that Carol Monaghan gets reelected:eek:

petition is now 8987 very nearly 9000

I guess you have to start somewhere and better Dr Nacul advising GPs on how to deal with ME patients than some BPS person but really it is like having a top of the range sports car and keeping it in the garage. Hopefully the no prescribing will in practice have to be overturned once the service...

David Tuller scores another goal in the World Cup of PACE :emoji_soccer:

theyve got all their material on their own website http://www.workwellfoundation.org/resources/

@Webdog s approach of challenging popular websites about their ME content to get it updated is a good model for improving the quality of the information available to the public and newly diagnosed people

yes Search Engine Optimisation is a challenge when you are up against NHS which will inevitably come at the top You can pay to come at the top of the page but I have no idea what sort of money involved - no doubt a waste of resources. The design of a home page and where information sits on it...

Modern day equivalent of the workhouse. Superficially it gives “normal” Society - aka Middle England comfort that some form of safety net exists. In reality it is to make things as hard as possible to access and stay in and scare the shit out of ordinary people so they only use it when...

I get muscle weakness only when my energy is gone. Particularly fatiguabiliy standing in a queue or just milling around at social events I have to sit down or lean against a wall if no seat is available. I’ve only come close to ending up on the floor a handful of times. I would say I get...

@Sing I’ve had a lot of laryngitis and swollen glands in my neck when I first started getting noticeably ill about 7 years ago at one stage a dr thought I had mumps. I don’t get swollen glands so much now but I do get tender points around rib cage shoulders and neck which I believe are tender...

No but it is rude so worse/funnier

didnt Ron Davis hint last year that he thought there was a small molecule involved? (Sorry for the Noddy level of my comment:bag:)

blimey ars technica not a very credible name for an organisation in my neck of the woods o_O

@Graham s training videos clearly worked very well @Trish

this is a belter thank you :thumbup::thumbup::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl:

pity he isnt up to date with proper science and ethical behaviour :whistle:

Thanks @duncan the bullseye rashes is the only thing that makes me think about testing for Lyme - I don’t remember feeling ill around the time or in the year following. I noticed you mentioned swollen knees in subsequent posts. I have some pain in muscles and joints but not noticeable swollen...

seems awareness of Lyme is spreading in the UK Public Health England have published new awareness info recently and I know from a general facebook group near me -not in the south where Lyme has been publicised before I believe - someone has in the last few weeks been treated for a suspected Lyme...