Search results

MEDICAL ADVISORS Professor Leslie J Findley Prof Findley is consultant neurologist and clinical lead at the Essex Neurosciences Unit at Queen’s Hospital. He is also clinical lead for the Clinical Network Coordinating Centre overseeing the NHS Kent & Medway CFS/ME Service. Prof Findley received...

Colin Barton goes round on social media slagging people off for banging on about PACE hence Alistair Miller being involved in this organisation not surprising just makes me sad that the Green MP supports them

In the last 20 years I havent done any sport or walking and gradually put weight on however I put a lot of energy into work and my career up until 4 years ago I was regularly travelling across the UK by train for meetings often doing a round trip in a day out of the house for 12/13 hours. Long...

the spend of any NHS organisation on a contract of any size with Phil Parker should be investigated by the National Audit Office

maybe Im just grumpy today due to the high (for the UK) temperature so no doubt Im probably missing the point of this why is research money being spent on what cognitive difficulties are associated with - someone who has pain all over their body cant sleep very well so is slowed down...

apologies but the only response to this is WTF:wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf:

is this a credible journal? who the hell would have been the reviewers for this article?

Parliamentary Assistant not doing their job on researching the issue before putting the question down - waste of time for all concerned if it doesnt raise something new Possibly just someone who has only recently been made aware firing off a question to show whichever constituents have lobbied...

exactly this I was diagnosed by NHS with CFS I was diagnosed by a private specialist as having ME both on the basis of coming back with nothing showing as abnormal on the standard NHS blood tests and on my history - so would I be counted as ME or CFS? Unless everyone in the UK with a CFS...

from @Lucibee blog MS: Another reason is that patient experience of CBT and GET outside the trial is reported as often being unhelpful or even harmful. This is an interesting and worrying observation probably explained by the treatment being given to people dissimilar to those in the trial or...

this is crazy

yes and I forgot about alcoholism there are a fair few known causes am I just being cynical or ignorant assuming that there must be as yet unknown medical causes for all??

the only people I know who have had hallucinations/delusions had Alzheimers/Parkinsons and my understanding is the hallucinations/delusions are a symptom of the underlying diseases in both cases is there anything to say this isnt the case for most if not all people who have...

i get a bit of tinnitus but not a big issue and I have never mentioned it to Dr - I do find guided meditation audios with music in the background works whereas I cant do quiet self guided activities and I also find I need quiet music, classic fm, on at night otherwise the hissing is there

I like that @Mike Godwin is still engaging with people with ME on twitter :thumbup:

Exactly you would think that ME organisations would be leading on innovative ways of making events INCLUSIVE FOR PEOPLE WITH ME rather than looking for examples from elsewhere. come on @Action for M.E. wake up

That British Tnnitus Organisation seems fully on board with it being caused by stress and have commissioned research into CBT for tinnitus related insomnia- lovely.

Agree with @Ravn very severe PWME need to be explicitly referenced otherwise Drs won’t know very severe exists.

Excellent @Barry thanks for setting this out in detail. You have given me impetus to get my meeting with MP sorted and a shortcut for preparation. :thumbup:

I like the term Catherine Hale uses in her report for the chronic illness inclusion project of stamina impairment to describe the way my ability to do things is limited. Not fatigue. Also isn’t every disabling illness distressing don’t like the overemphasis on this right upfront.