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    Michael Sharpe skewered by @JohntheJack on Twitter

    The question I would most like answered is: "who most influenced your early views of CFS, or ME as it them was, and why did they not wish to be associated with the subject?" Unfortunately I do not know the answer and therefore should not ask it. But I suspect Gelder, otherwise it is difficult...
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    What's in a name? Change to Ramsays?

    That tweet by Colby is good evidence for the proposition that complex matters cannot usefully be considered on twitter. The name should be used how? According to the original criteria? As a synonym for CFS under one of its sets of criteria, and if so which? What is to become of those with a...
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    Australian news article: “What causes chronic fatigue? What we know, don’t know and suspect”

    Let us hope that the editor, rather than the author, was responsible for the title.
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    Clare Gerada: influence on UK medical practice and ME/CFS management

    One feels obliged to enquire whether the terms of reference will extend to complaints brought against doctors, possibly frivolously, by their colleagues. I remembered that the term to describe Gerarda's position is "parti pris". EDIT. OK, I know its about gross negligence, and not professional...
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    Clare Gerada: influence on UK medical practice and ME/CFS management

    There appears to be a further difficulty. That tweet about complaining being easy and no risk to the complainant was dated 10 May. The announcement looks to have been made on 21 May. Is it credible that no one else connected with the selection process was aware of it? It calls into question the...
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    Clare Gerada: influence on UK medical practice and ME/CFS management

    It's easy to complain. There's no risk to the complainant.???
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    Clare Gerada: influence on UK medical practice and ME/CFS management

    She seems unable to recognise that complaints may be on behalf of those who have been killed. Those tweets should have been sufficient to exclude her from the role.
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    Merryn Crofts - media and inquest

    I think there is a risk in this approach in overlooking the fact that probably for many of us parasthaesiae represent the ever present cause of awareness of our illness. When one is lying awake at 3am, motionless, with no intention of moving much for another few hours, it is not fatigue that one...
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    Publications that show ME is biological

    It must have been a different Michael Sharpe who wrote the paper defining CFS in such a way as to apparently include ME. Admittedly they did provide a post infectious category, but drew it so narrowly as to make it virtually meaningless. Is he, like Reviewer 2, having pangs of guilt?
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    Merryn Crofts - media and inquest

    What has been done since 2010 to advance knowledge of ganglionitis in ME whilst money has been spent researching the effect of standing on a bit of paper and shouting stop. The cynic might think it is a case of "don't look in case you find". It may be that the earlier findings of one case in...
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    Publications that show ME is biological

    There was something in Ramsay's definition which could not have been fabricated and would require explanation by those who would psychologise the condition. He reported that before a relapse patients would turn pallid. I forget the exact description and timing, but I think it was 15 to 30...
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    Publications that show ME is biological

    One cannot be sure of that approach. It might merely persuade them to renew their attempts with increased vigour. One more push if you want to be cured.
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    Researchers Question “Gold Standard” Status of CBT

    I am all in favour of CBT being regarded as the gold standard of psychotherapy. It should have been abandoned in 1931.
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    Merryn Crofts - media and inquest

    Do these P.M. findings and the Coroner's decision have implications for the NICE review? A sufferer who has, sadly, died is shown to have had a disease which could reasonably account for at least some of the symptoms of at least some, but probably many patients. There is, I presume, no...
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    Merryn Crofts - media and inquest

    Could inflammation of the ganglia cause the parasthesia which were part of Ramsay's criteria?
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    Psychiatry Advisor: Addressing Depression in ME/CFS

    There looks to be a problem with their suggested prevalence rate. It looks to me to be at least ten times too high. If that is what they believe the condition to be they will include all sorts of symptoms and belief states. And we know exactly why so many depressive and psychiatric symptoms are...
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    World ME Alliance, was previously IAFME: International Alliance for ME

    Given that an S.I.W. is a clear indication of a desire to leave the battlefield, perhaps that is what members of Forward-ME have done. Although shooting oneself in the foot is the common metaphor, unexplained injuries to the right hand could also be an indication.
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    Europe’s open-access drive escalates as university stand-offs spread

    That makes it sound as though the reviewers ought to be on the list of authors. It makes one wonder who might have been reviewer for early papers by Wessely and White. The role might have been attractive to someone with a media image to protect.
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    Patients with Chronic Fatigue Syndrome needed for new study - Keele University UK

    How could any reasonable clinician or researcher think this method could possibly elicit information about the needs of those most in need? We know who will not be attending. One wonders what the screening process will be like to eliminate people with chronic fatigue.
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    Blog: Murky matters involving conflicts of interest

    I am not suggesting that it necessarily involves deliberate fraud. I just believe that people often did not do what they thought they did or what they intended to do. That's what it is to be human.
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