Search results

Riverford are now back to offering a greater range of products, including a greater range of organic meats, eggs, milk, cheese, butter, yogurt, cream, humus, bread and individually available 'in season' fruit and veg options. The minimum spend is £15 and you don't need to include a veg or fruit...

I think this highlights that PWME were concerned about the make up of the NICE review group for very rational reasons (the ability of certain members to scientifically and independently evaluate evidence), not simply a bias against psychological treatments!

This map seems to be able to show recent weekly new cases: https://www.arcgis.com/apps/webappviewer/index.html?id=47574f7a6e454dc6a42c5f6912ed7076 Edit: linked to from the gov.uk site: https://coronavirus.data.gov.uk/cases

A robust response will be needed because the MUS nightmare is happening in the NHS regardless of what the revised guidelines will say (or don't say). Even if the revised guidelines help PWME avoid the MUS treatments, these are still going to be the way the NHS deals with for example, chronic...

I wonder which research group this was? Additionally, why are Cochrane more concerned with 'research waste' than with the effects of poor and outright misleading research causing harm to patients, for example when medical practitioners take the abstracts and summaries at face value?

I feel like this too. I have never had a single hour where I have felt 'well' since I first had the symptoms of M.E. (mine also began in 1992). I have never been pressured to undertake either GET or 'CFS style' CBT, although over the years I have tried to do a lot more than I should have, most...

Yes, I agree with @Graham that the 'spoon theory' gives a false impression of what PEM is as well. It's not about borrowing from tomorrow's 'spoons', which implies that you just have less spoons tomorrow. But when PWME push beyond their limits they get ill and sick, as well as possibly causing a...

I am starting a thread on the 'Duties of a Doctor', which in the UK has replaced the Hippocratic Oath (as far as I am aware for graduating doctors). I don't want to limit this discussion to the UK though. Here is the link to the 'Duties of a Doctor - General Medical Council' information...

If people want to learn more about the cognitive processing problems often seen in autistic individuals, I suggest reading the books by Olga Bogdashina:

I suffer from what I call 'verbal dyspraxia' but could be seen as 'stammering' to an observer, I just cannot get my tongue around common words, so this makes it hard to communicate verbally especially when I am in a stressful situation (I also have a diagnosis of general dyspraxia). However, in...

When I was in hospital they said they couldn't find my daughter's telephone number in the file they had. Apparently this was a new file started at the point of the ambulance call. I asked them to bring up my GP records as I know it is on there. The nurses said they couldn't access that...

They have in the past used the excuse of lack of security. Of course this is nonsense because there are secure email system providers available (that encrypt the emails for you) that they could subscribe to. Somerset Partnership did this for me when they were doing my ASD assessment and Somerset...

Yes. I am going to do that. Currently they aren't even meeting their obligations under the NHS Accessible Information Standard (2016). My GP has accepted emails from me due to my autism long before the 2016 Standard came in, but still won't send me her communications electronically (I cannot use...

Even if hospital discharge letters don't specify a severity level (because of the coding system), it makes no sense for my GP not to do so when making a referral for me, as this is vital for the clinician I am being referred to understand in order to be able to treat me effectively and to make...

We generally refer to 'severe M.E.', yet I've never heard a doctor talk about 'severe CFS' or 'moderate CFS', they usually just refer to the illness as simply 'CFS'. I have heard the term 'mild CFS' used by medical practitioners though, I wonder what this tells us... Edit: So I told the...

On my NHS hospital discharge letter last week they wrote that I had 'CFS', although I never used this term myself and was not originally diagnosed with it (in the 90's my GP used the term 'M.E.' as have some, although not all, of my subsequent GPs. So to state the term 'CFS' refers to a...

I also have ADHD, so I suspect I'm very different than most PWME neurologically. I can never 'switch off' my thoughts, although they often do go round repeatedly in a loop. Even when I fall asleep I have very vivid dreams and wake up feeling mentally exhausted and usually still 'wired'. The only...

In the autistic self-advocacy movement this is what is termed as being 'A self-narrating zoo exhibit'....

However, I was still able to make the cognitive decision to discharge myself...

I actually go through stages, I internalise rather than externalise my meltdown initially. I become a sobbing mass and if left alone at that stage I need usually a couple of hours to become 'myself' again. But when I get pushed beyond this point I flip and do lash out like a wounded animal. I am...