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The hardest thing is that as a child/young person/young adult I used physical activity to cope with my autism problems. I used to love going out cycling (thought nothing of doing a 50 mile ride over the Blackdown Hills in Somerset, where I lived). I also loved hiking and camping. This is what I...

The first and second parts of her PhD seem very problematic given the issues with defining appropriate criteria for these 'CSS' disorders, the fact many autistic people only receive their diagnosis in adulthood (so many remain undiagnosed) and the issue of underdiagnosing females with autism...

They're cousins!

I also am autistic and have M.E. However, I was diagnosed with M.E. a couple of decades earlier than when I received my NHS autism diagnosis. I usually say that my M.E. began after a severe upper respiratory disease which I had at age 25, when breast-feeding my second baby (I also had a 2 year...

For those on the forum who don't follow UK news (so you can share the brillance of Wonko's comment): https://edition.cnn.com/2019/06/18/uk/nigel-farage-milkshake-sentence-gbr-intl/index.html

Or on a more serious note, for those who want to understand what the concept was originially intended to acheive: https://www.kingsfund.org.uk/publications/social-prescribing

'In the latest in our occasional series of fly-on-the-wall documentaries from the world of general practice we look at how non-medical advances are making life more convenient for patients and relieving pressure on busy doctors. This week we take the lid off social prescribing'...

NICE are currently developing an official clinical guideline on Thyroid disease. See: https://www.nice.org.uk/guidance/indevelopment/gid-ng10074 https://www.nice.org.uk/guidance/gid-ng10074/documents/stakeholder-list-3

If this is the case then the GP(s) haven't read the full recommendations! See below [bolding mine] This recommendation may not apply to Those with severe symptoms, as few were included in the studies reviewed. However, there is no clear evidence on how to attribute symptoms to SCH reliably...

When my daughter plugs in the hoover my cats run away. When I plug in the hoover they just sit still and look at me - knowing the probability of me actually using it is very remote...

This is also true for me - when in PEM. However, at the time of using my muscles for a specific physical activity the immediate fatigability is in the muscles I am using (e.g., arm or leg).

Seconded!

Yes, definitely (for me too)! If I overdo things on a 'better day' than I find it hard to go to sleep as I feel mentally 'wired' but physically tired. But the 'crash', extreme worsening of all my ME symptoms (physical and cognitive) happens the next day - only after sleeping - sometimes...

This is exactly how I would describe my sympoms with regard to fatigue and PEM.

I've just been exploring my local Chronic Pain Service's website and came across a link to this video: [In the top left there is an icon which links to the playlist of the 6 videos covering the complete lecture] In it the speaker mentioned a term new to me, 'Chronic Overlapping Pain...

Link to useful document explaining the various problems and solutions: http://www.bre.co.uk/PDF/SOUNDINS_HOMES.PDF

I've used the Cashplus Prepaid 'Flexiplus' Mastercard in the past: https://www.cashplus.com/pricing/ As I rarely used it, it was most economical for me to pay the £1 charge per transaction with no monthly charges, but there are other options available. It was very convenient to use as the...

@large donner - Have you considered taking up the 'patient involvement' opportunity to 'co-produce' the Plain English summaries for NIHR and MRC research projects? :nerd::D

I wouldn't usually post the news from the Benefits and Work website, but this item will be relevant to anyone claiming ESA or UC. From 26th March updates: In spite of the risk to claimants’ health, the DWP are wilfully discouraging doctors from issuing fit notes to employment and support...

I just wanted to bring to the attention of UK members that there are opportunities to obtain complimentary (free) tickets to the regular Westminster Health Forum conference days. These usually take place 9 am - 1 pm in London, but occasionally they are delivered in other cities. An example of a...