Search results

  1. N

    AFME decide Geneva is where their #millionsmissing contribution should be

    Sounds expensive
  2. N

    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    55% It really was a hell of an 'own goal'.
  3. N

    Action for ME has joined S4ME

    About ten years ago I sold Christmas cards to raise money for them!
  4. N

    Forward ME Group – Bodily Stress Syndrome

    Thanks for all you do Suzy.
  5. N

    How I'm feeling after my MS ‘body reboot’ - BBC Website

    Doesn't Paul Cheyney do something similar in Panamanian and Costa Rican clinics? But I don't remember reading any of the results.
  6. N

    Sinus pain - no mucus - and related issues

    :hug:
  7. N

    Nasobiotex L. Sakei Probiotic Powder for sinus microbiome - anyone tried it?

    Welcome to the Forum
  8. N

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Done
  9. N

    ICO ruling: QMUL should release copies of COI statements made to the Trial Management Group

    This is not related to the above but maybe of interest - Malcolm Hooper etc. on the Gibson Inquiry with, maybe, interesting quotes from Aylward: http://www.meactionuk.org.uk/HOOPER_CONCERNS_ABOUT_A_COMMERCIAL_CONFLICT_OF_INTEREST.htm
  10. N

    Dutch Health Council on ME/CFS tomorrow on national news

    @Jonathan Edwards I now have the ear of my MP who went to the recent debate and asked a question. Do you have any thoughts of what I need to ask or tell him? My last email to him was copying @Sasha 's letter asking him to go. Sorry this is off topic I but don't know where to ask. Please move if...
  11. N

    Action for ME has joined S4ME

    Welcome to the Forum @Arisoned
  12. N

    BACME Meeting 14-15 March

    "Children cheating on the actometer." Didn't PACE start off using actometers? Did they stop because the adults cheated?
  13. N

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    @Jan said: 'Is there any chance Holgate may step down @Jonathan Edwards ? Patients have no faith in him, the trust has dissolved over many years of talk, but no action apart from BPS studies.' A few years ago I wrote to my local NHS trust asking for help. They wrote to my GP saying that...
  14. N

    PIP Tribunal

    Wonko, This is so awful that I can't think of what to say that could be of comfort. Just on the offchance - I'm wondering if anyone has contact with the East Anglia radio programme that did something on UEA and ME - maybe to do with IiME's (?) new dept at the Uni. Hoping someone will make...
  15. N

    Daily Mirror: "Heartbroken mum suffering a 'living death' that means she can only see her son a few minutes a day"

    Really is heartbreaking.
  16. N

    Gary Burgess - 'My illness has shown journalism can be a force for good'

    Welcome @Peter
  17. N

    David Tuller - Trial By Error: News About My Plans

    Excellent news.
  18. N

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

  19. N

    Interviews on ME on Radio Solent

    Well done @chicaguapa and thank you.
  20. N

    My ME story on BBC Radio Jersey

    Thanks again Gary, two one hour programmes in one week must be a record. You mentioned B12 injections - I've used very fine needles that are used for insulin injections, and had very little if any pain.
Back
Top Bottom