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    UK: Priority Setting Partnership for ME/CFS

    Part of the follow up will be maximising coverage as a large response would highlight the dire situation with relevant research - there is a page on the website for use on social media Spread the word - ME/CFS Priority Setting Partnership (psp-me.co.uk) @MEMarge will be able to keep everyone...
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    University of Bath Psychology dept: Fatigue in Neuromuscular Conditions, 2021, current PhD research project

    Perception of fatigue should be in the PhD title. Not fatigue .
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    Exploring anhedonia in adolescents with Chronic Fatigue Syndrome (CFS): A mixed-methods study, 2021, Smith, Crawley, Loades et al

    Gobsmacking given the length of careers here . So much time, so much funding and yet still Not a clue... Inept dosnt really cut it. Perhaps @TiredSam will be able to advise if there is a better word in German as it tends to conjugate nuance well. No doubt this will also be coming down the...
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    Central sensitization and severity of gastrointestinal symptoms in IBS, chronic pain syndromes, and inflammatory bowel disease, 2021, Midenfjord et al

    So a combination of leading questions similar to HADS combined with symptom presence and diagnoses. A correlation fest for anything you want to find ?
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Viral latency. Interesting re Ebola tweet. Really viral latency bring suggested by some longhaulers
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    Central sensitization and severity of gastrointestinal symptoms in IBS, chronic pain syndromes, and inflammatory bowel disease, 2021, Midenfjord et al

    What does the CSI (cental sensitivization inventory ) look like ? Another nuanced way with language ?
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    Australia: Congrats to Daniel Missailidis: Young Achiever Award winner 2021!

    Fab. :):)
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    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    He is being the fall guy for Wessley ?
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    Validation of the PHQ-9 in adults with dissociative seizures, 2021, Lopez, Chalder et al

    Ironically EC has recently made a big deal of asking patients about scales, illness perception / experience . Sadly the power asymmetry is not recognised and language is so easily suggestible when conducting interviews . AfME have said that children use different language to describe their...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sadly ACES are all pervasive and hoover up funding .
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    Psychosomatic medicine and the psychologising of physical diseases

    I don't think you can think yourself better . Perception and actuality are often different , perhaps ironically because we want them to be. We want to " feel" better, and this basic need is being exploited. Many adjust to illness and the datum of what is " well " is forgotten due to time and...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I suspect the summation will not be a nicely rounded 42 in this case.
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    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    Note the reframing of recovery again. 3rd paper I think to mention it. Unless charities do something about it it will become a fait accompli. @Russell Fleming @phil_in_bristol
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    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Screenshot of one line put down from Monbiot
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    Value of Sufficient Potassium

    Potassium also affects magnesium. It seems to help absorption , so it may be a double effect.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Long covid patients really don't have a clue. Perhaps someone should provide them with a link to some of this info .
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    Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison, 2021, Moore et al (Esther Crawley)

    Follows on from previous study ( I think there is a thread) - opens the way for ACT and recovery to be a more psych based concept. With power asymmetry ( which clinicians and teachers do not really seem to understand st all ) this will not be too difficult to achieve. I would like to bet that...
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    BPS attempts at psychologizing Long Covid

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    Prevalence of (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care, 2011, Lacerda,Nacul

    Here locally GPS do not diagnose ME/ CFS. In children paediatrics diagnose. Adults commonly have Post viral syndrome / post viral fatigue. We have no specialist clinics etc. I wonder how the study would have fared here.
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    Preliminary Evidence on Long Covid in children, 2021, Buonsenso et al

    5 minute skim No indication of a PEM parameter 89% white Infection Timeframes / screening may be important as indications that variants can have more effects on children ( eg Kent) Fatigue reduced to single symptom yes / no Interesting re what may have been screened for post Covid - how...
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