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    Clinical signs in functional cognitive disorders: A systematic review and diagnostic meta-analysis 2023 Cabreira, Stone, Carson et al

    They are legacy building. Setting up a field for a new generation to take forward. It's unsettling how few choose to see through the misdirection.
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    Open What happens when people with ME keep symptom diaries?

    Too much energy and cognitive ability to maintain physical ( as in paper ) symptom diaries - probably impacted negatively when we did one way back. My daughter can't remember what she's eaten 20 mins after eating it , so it can be a misremembering record if you can't fill it in in real time...
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    Long Covid in the media and social media 2023

    Video from Germany with subtitles Video For discussion go to News from Germany where this is also posted.
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    USA: The RECOVER Initiative - Long Covid research

    Climate change physicists . Knowledge of interlinked systems, tipping points , positive and negative reinforcements to interlinked systems. Couple this with machine learning and some " fancy pants" maths ( quoting Broderick) and we might get somewhere .....
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    New free short module for clinicians on severe ME/CFS, Dr Nina Muirhead, 2023

    It's a good resource . It saddened me to think how far from the correct answers we still are .
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    USA: The RECOVER Initiative - Long Covid research

    Cancer research also benefitted once physicists got more involved .
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    Trial Report Occupational therapy-based self-management education in persons with post-COVID-19 condition related fatigue, 2023, Hersche

    60 mins and 90 minutes are a long time to concentrate. Add in travelling and this is probavly not reaching a cohort who need it
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    Covid-19 vaccines and vaccinations

    Thanks Trish
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    Long Covid in the media and social media 2023

    The audio of Madeline Miller reading the article is excellent
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    Covid-19 vaccines and vaccinations

    Not registered as one , so who knows ...
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    Covid-19 vaccines and vaccinations

    I'm under 60, have no known health conditions and got a booster appointment notification this week. My OH , with health conditions didn't . Very weird .
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    Ed Yong Articles on Long Covid & ME/CFS

    Exertion is seen through a physical activity lens. Cognitive and emotional exertion are more difficult to gauge and can impact a lot more ( in our experience ) . This tends to be less well appreciated .
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    Long Covid in the media and social media 2023

    CDC updating info with info which was relevent in 2020....
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    Trial Report A multicenter virome analysis of blood, feces, and saliva in myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Briese et al.

    Thanks @mariovitali . I don't know if it is - will read later after some strong coffee. The T cell activation is a documented COVID consequence - even asymptomatic infections . Dosnt bode well , especially for kids .
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    Trial Report A multicenter virome analysis of blood, feces, and saliva in myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Briese et al.

    Tissue. Most arguments re viral persistence are that it's tissue that provides the reservoir. Some COVID research has turned up viral evidence in tissues I believe. Not so easy to look at .
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    ££££
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    Functional Overlay Model of Persistent Post-Concussion Syndrome, 2023, Mavroudis et al

    Oh FFS Sorry , but really????
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    GRP78 and cell behaviour

    Cancer research which has determined that this protein has a different action when under stress - moves from endoplasmic reticulum into nucleus and controls gene expression. Interesting as a link perhaps to misfolding proteins ...
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    Danish RCT of Cognitive Behavior Therapy for Whatever Bothers Your Physician About You, 2023, James Coyne, Substack blog

    If there is a more suitable thread feel free to move it mods
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    Mitochondrial dysfunction and the pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 2012 Booth et al

    This is the test which could not be replicated, though I think there were some aspects changed in the attempt ? My daughter and aunt both had ATP profile tests done early in illness . There were interesting aspects relative to translocator protein ( aunt ) , low B3, low magnesium ( daughter) ...
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