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#3: Academic-state-corporate nexus

#2: Constructs and propaganda

In the meantime, if you're using a computer, the article pastes very easily into a word processor document. I do this with most longish articles so that I can go through and break up the paragraphs into a manageable length before I attempt to read the text, but of course you can also change the...

:laugh: :laugh:

Thank you, I hadn't heard of him before. Honestly, if I could have the effect I got from AZ #1 once a week, I'd almost be back to normal function! The only vaccine I have regularly is the annual 'flu jab, but unfortunately it doesn't do the same. Other than an occasional slight bruise where it...

I got that too, after AZ. Less with the second dose than the first, but it's lovely while it lasts, isn't it. If it weren't for the fact it makes some folk much worse, I'd be hoping that we all need a booster at some point! :laugh:

Yes – and the trouble with releasing something like R.I.C.E. into the wild is that even if you're the most curious and least status-conscious scientist in the world, you can't call it back! It will stay in people's minds, often for decades. Folk who get niggles from training that aren't bad...

[Tacky advertising jingle]: Thaaaat's the BPS method, folks! The only explanation I can come up with is that they think chronic pain is on the level of general traffic noise, which you soon learn to tune out when you live right next to a busy road. They forget that it's not really feasible...

Indeed! I also wouldn't be surprised if some of them don't realise they have PEM because no-one's explained the concept properly.

I saw this too, and checked whether signing the Type 2 form (a sort of global opt-out) gave better security. Apparently it doesn't, and Type 1 is the best for this particular exercise. I crossed out the word 'identifiable' on my form, as well as signing it. My GP is one of those who's...

I did the same. And Type 1 opt-outs, which is the only one to use for this, are due to be phased out before too long – so there may be another hoop to jump through. :rolleyes:

Our surgery campaigned quite hard against the last initiative a few years ago, and encouraged patients to opt out because the doctors felt the information would not be used in our interests. They even provided forms. I think they're too overwhelmed this time, though. And it appears that as long...

I'm not sure how widely known this initiative is, but NHS Digital is planning to scrape enormous quantities of data from UK patient records to share with third parties (it's not clear who these are, but they could well be insurance providers and other commercial interests). The data will be...

It usually means getting worse again, after experiencing (whether due to treatment or the natural course of an illness) an improvement in symptoms. I think it's generally taken to mean deteriorating due to the same condition, though I suspect it's often quite hard to know for sure, specially as...

It is an interesting question. To me, though, the term relapse clearly implies a continuation of an illness. If we're only looking back in time, we know whether or not the person who experienced a remission became ill again; and if they did, it suggests that they had ME throughout. I'm not sure...

Some really quick responses in note form (sorry, I have to go out) to @Peter Trewhitt's useful list: I'd add pregnancy/childbirth to the lists of possible events. Some of the terms (e.g. cardiovascular or neurological event) might need a bit of explanation. I'm not sure about the term total...

This is an important point, especially for people whose onset wasn't clear. I associate mine with EBV because I was definitely exposed to it by my boyfriend, but I didn't begin to develop ME symptoms until five or six months later. This being the 70s, no tests for EBV were done even on the...

It is annoying, but in this case it might just be that it's easier to explain it that way in a news article?

Especially as you can no longer rely so much on the solution they had in the 70s: handing out a prescription for extremely addictive tranquillisers, which kept people quiet beautifully, some of them for decades.

True! This is why the research perhaps ought to be done separately. If evaluated protocols using inexpensive technology are available to researchers doing small studies, there's little reason not to co-opt them, especially if the only alternative is subjective self-report. Previously tested...