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  1. Sasha

    Special screening of Unrest for MPs and honoured guests - oct 24

    @Jonathan Edwards said on that other thread that Charles Shepherd would be a good person to ask for advice (the medical adviser for the UK's ME Association).
  2. Sasha

    Plan to take 'Unrest' film to Canadian parliament - help wanted

    I'm not on Twitter, unfortunately, so don't have the means to pass that message on to her. Does anyone? Pity Charles Shepherd isn't here yet.
  3. Sasha

    Special screening of Unrest for MPs and honoured guests - oct 24

    Are you aware of this plan to show Unrest at the Canadian parliament? https://www.s4me.info/index.php?threads/plan-to-take-unrest-film-to-canadian-parliament-help-wanted.433/ @brf :)
  4. Sasha

    'Unrest' now in top 15 for documentary film Oscars

    [Edit: Since I started this thread about Unread being in the Oscar longlist, it's made it to the next stage and the top 15 so I changed the thread title.] 'Unrest' has been submitted for consideration for an Oscar. It's on a longlist of 170 documentary films, but still...
  5. Sasha

    Solve ME/CFS Discovery Forum 2017 - video summary & newsletter special issue

    Intriguing five-minute video showing excerpts from the October 14th, Washington DC meeting of leaders from academia, biotech, government, research, and medicine, brought together by Solve to 'disrupt to the status quo' by fostering collaboration and speeding up research. Individual...
  6. Sasha

    Charles Shepherd and Jen Brea on Breakfast Time tomorrow

    Just saw it - both Jen and Charles did a great job. The clip they showed will have been a real eye-opener - just horrific - and Jen stuck the boot into GET. :)
  7. Sasha

    Charles Shepherd and Jen Brea on Breakfast Time tomorrow

    Sorry, I spoke prematurely! I can't have been listening properly. Now, surely! Any minute! They go off the air in ten minutes.
  8. Sasha

    Charles Shepherd and Jen Brea on Breakfast Time tomorrow

    Bump! They just mentioned it coming up, any minute now...
  9. Sasha

    Useful gadgets that make life easier for MEcfs patients and carers

    I have wooden shutters on my bedroom window and thought it already kept the room pretty dark but there was a gap where a neighbour's security light shone in. I had a wooden strip nailed to the shutter to close the gap and the difference has been huge. Having near-total blackness has been a real...
  10. Sasha

    Charles Shepherd and Jen Brea on Breakfast Time tomorrow

    Wow - for overseas folks who may not realise, this is a massive thing in the UK.
  11. Sasha

    Tip for people who can't swallow large capsules

    Also good ideas! The advantage of the small capsule (and they are very small) is that you don't taste anything. Some medicines are extremely bitter.
  12. Sasha

    Tip for people who can't swallow large capsules

    From another thread, a very useful comment:
  13. Sasha

    Useful gadgets that make life easier for MEcfs patients and carers

    I posted this on another thread but perhaps it's also relevant here: Many people have problems swallowing large tablets and capsules. As far as capsules go, it's possible to buy empty gelatin capsules on Ebay, Amazon, etc. so that you can open your own large capsules and decant the contents...
  14. Sasha

    ME Association review of Unrest in Parliament:..

    I hope Charles Shepherd will join the new forum. It would be good to have a conversation on how to capitalise on this.
  15. Sasha

    BBC wrong to not challenge climate sceptic Lord Lawson

    There's a weird, giant, blank space at the top of your post, @Valentijn...
  16. Sasha

    Tip for people who can't swallow large capsules

    I find that the capsule feels too much of a foreign object and I can't swallow it then. I have to take it with something like chewed-up bread or meat.
  17. Sasha

    Tip for people who can't swallow large capsules

    You can buy very cheap pill-cutters at pharmacies that allow you to chop them into smaller, measured portions (or I suppose you could crush any tablet and cram it into tiny capules!) But you wouldn't want to do this with those that are specially coated so as to be protected in the stomach...
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