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I rarely go out and seem to have ended up with a bunch of useless masks. I'd like better ones. I gather that cotton ones, even with a tissue layer, aren't much good; I've bought some that are supposed to be better, but they don't fit, so presumably are 100% useless for self-protection. What are...

But @Andy quotes this: Restricting the survey to people still doing HRM seems to be against the intended aim of the survey.

But I think the question of why it doesn't suit everyone is really important, if this is an important intervention. There may be solvable problems.

Thanks, Daisy! @PhysiosforME - If you want people like me, who've stopped HRM, to fill in the questionnaire then I think you'll need to edit the front end to say so. I would have given up if not for Daisy's comment, because the questions are so clearly phrased to relate to current use and the...

@PhysiosforME - I'm confused! The intro says, 'The University of Leicester (UK) would like to survey the experiences of people with ME/CFS who are Pacing using a Heart Monitor.' So is this only for people who are currently using a monitor? I've used one many years ago but don't know if I should...

I would be hugely cautious about using a photo from a 'free' site. If someone has uploaded a photo of someone without consent, that person could sue you - especially if you've portrayed them as suffering from a stigmatised disease such as ME. And the same limitations about depiction of illness...

The wording will be different on different sites but the idea will likely be the same. I don't think this is actually good for us. There are some stock images that are high quality and would be appropriate - but the same issue could prevent their use, too.

An issue I hadn't been aware of concerning stock images is that part of the license may require that you don't use a photo of a model in any situation that implies a mental or physical deficit.

Thanks, Jo, that's all very interesting. What sort of Covid prevalence would you say was 'minimal risk'? And by 'eradication' do you mean zero cases, or so few cases that it's 'minimal risk'? Given the terrible situation worldwide, I'm wondering whether herd immunity will ever get us there...

I was vacc'ed at home for that reason. Sorry, Trish, I didn't realise - have I mucked that up?

Sorry to hear about your experiences, @Ariel, @Invisible Woman, and @Wonko. I'm wondering how the government sees this, and epidemiologists (people like Anthony Costello). Where do they see us all headed?

I haven't been following the news for a long time now and I'm wondering what the end-game is supposed to be - in the UK, at least - for the pandemic. I'm wondering whether it will ever be reasonably safe for a PwME to go out in public as normal again. Prevalence is so high at the moment that...

I was asked to set goals by a physio and refused to do it. Asking people who can't control their own recovery by their own efforts to set goals is cruel.

Thanks, @Andy. I'm eager to start spitting in the interests of science but this data protection stuff is vital and I know the DecodeME team have been working hard non-stop to go as fast as they can. I'm very grateful for all their efforts!

But I wonder why a vaccine would stimulate antibody production when the virus itself wouldn't?

I seem to be always barely breathing! Shallow breaths, and slow.

I wonder how some Long Covid patients apparently improving after vaccination might tie into this.

Well done!

But I believe the sites themselves take a really dim view of that.

Actually, I would also email Bokus.com. They may take a dim view of authors demanding that customers remove bad reviews.