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  1. Dolphin

    Merryn Crofts - media and inquest

    Unfortunately this link does not work in the Republic of Ireland. I'm guessing it only works in the UK.
  2. Dolphin

    Jen Brea tweets about U.K. Unrest campaign

    Jen Brea continues to get criticism on Twitter. To me, it seems reasonable for her to raise the issue that piracy and watching the documentary for free could very plausibly have had negative consequences on the amount that would be raised and hence available for the campaign. There is a...
  3. Dolphin

    Version 1.0 of ME/CFS Common Data Elements now available

    For what it is worth: https://jaxmecfs.com/2018/03/27/release-of-common-data-elements-cdes-public-comments/
  4. Dolphin

    Jen Brea tweets about U.K. Unrest campaign

    I'm afraid you will need to explain more explicitly what you mean, for me to be sure I understand exactly what you are saying anyway.
  5. Dolphin

    Jen Brea tweets about U.K. Unrest campaign

    For anyone who missed it, Jen has posted a long thread of posts under the initial post on Twitter, including answering some people's questions:
  6. Dolphin

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    I'm not sure what you are saying but to see all the tweets for anyone on any browser, you have to click "tweets and replies". If one clicks on "tweets", one doesn't see the replies. Nothing particularly unusual about this. https://twitter.com/cfs_research...
  7. Dolphin

    PACE trial TSC and TMG minutes released

    Apologies if this has been posted already:
  8. Dolphin

    PACE trial’s findings fundamentally challenged by a new study (Simon McGrath blog 22 Mar)

    Not critising but just to point out to everyone I still think it is useful to tweet, like or retweet even if one doesn't have many followers. Twitter now uses algorithms like Facebook to decide what is highlighted in people's feeds.
  9. Dolphin

    A general thread on the PACE trial!

    I'm not sure whether I am misreading what you said but improvement rates of 59% and 61% were reported in the Lancet using their revised, very lax, definitions of improvement.
  10. Dolphin

    A general thread on the PACE trial!

    Somebody who got this reply sent it on to me. This is not true. A paper on recovery was published in a peer-reviewed journal. Although they couldn't have referred to it here a paper is coming out soon which includes a reanalysis of the primary outcomes as well as the recovery measure.
  11. Dolphin

    ME: The rise and fall of a media sensation - Patricia de Wolfe

    If I recall correctly she is a patient (I think connected with one of the London ME groups) and she did a (sociology?) PhD on the issue.
  12. Dolphin

    Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis: It's Mitochondria, Not Hypochondria - by Sarah Myhill

    https://sci-hub.tw/http://onlinelibrary.wiley.com/doi/10.1111/j.1365-277X.2008.00933.x/full Here is a paper that looked at the issue. Unfortunately I don't think it gives normative data on diet but does say:
  13. Dolphin

    MUS: "Medicine has a sexism problem" by Maya Dusenbery

    I've heard quite a few people challenge the claim that male pattern baldness gets more. I have never seen good evidence that it is true.
  14. Dolphin

    Correspondence from the DWP for 2003

    From the Royal Colleges report (1996) written by Peter White, Simon Wessely and others:
  15. Dolphin

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    Though I wouldn't say all tips have no value. My family converted our garage into a room for me. I found by lying on the couch in that room during the day rather than lying on my bed I did tend to get to sleep quicker.
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