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Sorry to keep on about this, but NICE review has referenced the following too. NHSHEALTHAND WORK.org stuff. ( My emphasis) The newly uploaded website states, "Information for healthcare professionals, employers and employees providing the current evidence on managing and supporting...

Praise, be, this module is truly dreadful and dangerous.........

Simon Collin who was responsible for it said it stopped in 2015/2016 when I rang him and asked! I believe it was a son of BACME..... The NOD was a centralised repository of routinely collected CFS/ME Minimum Data Set (MDS) data. These data were collected (routinely) by clinical teams around the...

All the more reason to address the other matter of NHS Health and Work Guidance which is still up there doing the business for GET CBT and the jolly PACE people.............Read it and weep https://www.nhshealthatwork.co.uk/chronic-fatigue.asp

THis is interesting..... https://www.ncbi.nlm.nih.gov/pubmed/26613325 Format: Abstract Send to Rev Environ Health. 2015;30(4):223-49. doi: 10.1515/reveh-2015-0026. Review of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: an evidence-based approach to diagnosis and management by...

Spot on- Barts clinic , then once the " leading light" said in 2008, " We don't do home visits", or severely affected or children!" and charged over £4500 per patient tariff when poor old Norfolk and Suffolk did all that over a vast geographical rural area for £450 or so per patient. It's a...

Then RCGPs material is dated 2011.... when, guess what was the best thing since sliced bread?... It says it was "reviewed" in 2018 . Perhaps someone with access to the material could do a track change exercise....?

This will be vital;a follow up is needed, especially regarding the inconsistency of the various "arms" of the NHS and expressed messages. I am committed to again highlighting the NHS (Plus) now NHS Health and Work iniquity and inconsistency. May try a local MP who is in side to ask the minister...

The info on ME and Cfs needs taking down so Government and agencies are working and singing from the same hymn sheet. This guidance is NOT FIT FOR PURPOSE and should have been taken down in 2011. Dr Ira Madan at KIng's should do this! Ira Madan consultant occupational physician at House of...

Likewise my husband. Now down to 2.5 mg in morning and occasionally additional 2.5 during afternoon to manage a big evening event. This protocol is supported by GP who regularly reviews.

https://www.actionforme.org.uk/uploads/me-and-work.pdf read it and weep NHS Plus, NHS Health and Work (still out there and available to OT's in Occupational Health) NHS Plus guidelines In addition to guidelines for GPs and other healthcare professionals involved in diagnosis and symptom...

https://www.actionforme.org.uk/living-with-me/managing-work/see-me-project/ This is interesting....... We developed SEE M.E. in response to this, delivering it in partnership with the specialist M.E. clinic at North Bristol NHS Foundation Trust, Action on Disability and Work UK, Jobcentre Plus...

Thank you David but particularly, thank you Trish for putting the leopard and it's spots firmly back in the box. Peter's Principle applies to AfMe... me me me; is not this is a case of the "means" meeting the "ends" ?! Which is organisational survival together with personal career needs etc...

Read the James L Wilson book Adrenal Fatigue which helps understand this enormously. "What Is It? The term "adrenal fatigue" was coined in 1998 by James Wilson, PhD, a naturopath and expert in alternative medicine. He describes it as a "group of related signs and symptoms (a syndrome) that...

The issue is his home CCGS are out of order and need to be put down with a firm foot! They are pushing for what patients don't want and they are running a fatigue clinic not an ME clinic. Sheep and goats.... And they are in charge of a contract covering 2.5 million population!

I know, .......teaching me with 20 of battling to suck eggs, but at least I can throw his expressed knowledge of ME and quote it to the CCGS, his CCG excuse my French....( bast**ds) who are tricky to say the least and with whom I am doing battle as I speak!

Another result and fulsome reply! Peter Aldous Waveney Suffolk MP Dear Ms R Thank you for contacting me about ME, which can be a painful and extremely debilitating condition, impacting on the quality of life of an individual. While there is currently no cure for ME, there are treatments that...

So do I, implicitly!

My husband has this and we have been revisiting James L Wilson's book on Adrenal Fatigue, what he calls Hypoadrenia. ( For reference- https://www.amazon.co.uk/Adrenal-Fatigue-Century-Stress-Syndrome/dp/1890572152) When husband had an adrenal saliva test, we was at rock bottom in 2008. NHS...