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Not only has ME caused me to have to split from some family members, lose friends it has also left me too unwell to have children. I might have been physically able to produce one, but certainly not capable of looking after it and because of the rift caused by ME I wouldn't have had wider...

Experts should be held accountable for their publicly given advice. They'd be far less free with it. I have two close relatives who had hip replacements over a decade apart. Patient 1 an early 40s non smoker and patient 2 a mid 30s smoker. Patient 1 had quite a few days rest whereas Patient 2...

I've just read the abstract, but from that it sounds to me like those nurses were "frontline" staff. A&E, walk-in clincs, that type of thing. This means they will be in close proximity to a higher number of people throughout the day and will spend their working day in a work area that has a...

I was put on a strict exclusion diet to try to work out allergies. I can't remember now exactly how long I was supposed to be on it, but my weight plummeted and I was taken off it early - possibly 4 weeks in. I was still eating 3 meals a day plus snacks.

Oooh, that sounds handy. Much better than the stuff I have to keep applying after contact. Touching the outside if the bottle, your handbag if you forgot to slip it in a pocket first...

I quite agree. I have a little bottle of hand sterilizer in my bag for when I for out. Nothing to do with coronavirus, just coughs and colds. No matter where I go, it seems someone is lurking specifically foe the purpose of having a coughing and spluttering fit as I go past. :cautious: Lots...

Even if resting, I have to eat a little and often. I have some gastric issues that may or may not be related to ME that causes problems if I eat too much in one sitting, or eat too quickly. I have regular little snacks mid-morning, mid afternoon and 2 in the evening. In addition to lunch and...

It depends what you mean by fad - yes, the surgery has been around for a while. It is the sudden attention to it that may appear as a fad to some. I deliberately didn't refer to any one individual in my post because it wasn't aimed at Jenny or any one else in particular. For the last 20 +...

What could possibly go wrong? :rolleyes:

I can't either. If I don't eat regularly I start to feel extremely ill. This has happened since developing ME.

I imagine GPs have a lot of reading to do about all sorts, including admin stuff, all of the time. This will be seen as reference material and not something to sit down and read cover to cover. There's no harm in them having a copy for reference though. It makes it far more likely that if a...

I have zero medical training or knowledge but from my own experience I tended to find constipation related back pain was more lower back (for me at any rate). I had a lot of problems with IBS so it was either mad dashes to the loo or not going for days. If I haven't been properly supported...

Yes. I wonder if it would be within the remit of advertising standards? Could the literature it appeared in be classed as advertising?

Sorry can't seem to cut and paste from the document itself. Within the document it states the test doesn't distinguish patients with chronic fatigue from those with chronic fatigue syndrome. The test is a single event - 3 maximal grip tests held for 5 seconds with the strongest grip being used...

If you have the resources then it might be worth contacting the tutor. If it works out then the next batch might of nurses might be a little better informed. Like you @Anna H I can see issues with every quote in your post. Especially - I completely fail to see how a nurse telling you about...

I agree @adambeyoncelowe, I'm not trying to throw spanners into the works for the sake of it. I am concerned we ensure that any test carried out is testing what we think it's testing and does it as accurately as possible. That there is some way of ensuring it is carried out properly - who...

I've had high dose one off injections occasionally because of allergies. I too felt very wired and edgy. I just assumed that was the symptoms of the allergy and being in A&E, but now I'm wondering if some if it might have been a side effect of the steroid.

It depends on how this test would be used @adambeyoncelowe. Quite right in terms if pacing, but I would have been initially stronger and possibly with less fatigability. I have become worse over time going from moderate to severe. Well, I would now but in the earlier years I wouldn't know...

Yes, unfortunately it is. Loath though I am to criticise a fellow patient who just wants to get well, patients who claim to have been cured by treatment X and then by treatment Y and then something else fuels this kind of patient as attention seeking or learning illness behaviours from other...

I did meet someone who had been prescribed speed by their ME doctor. She was mildly affected at the time and still working. She crashed very badly.