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    Coronavirus - worldwide spread and control

    I agree the limitations on testing and the advice isn't great. However those criteria for testing might have been so narrow because they wanted the test for those most likely to have been exposed as there weren't enough to go around. hopefully with tests becoming more freely available things...
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    Cooking with Corona - coping with power cuts

    Still too long without warning, or any information being given I think and worthy of a complaint.
  3. I

    Cooking with Corona - coping with power cuts

    That is grounds for a complaint to the water company. 24 hours without water and no warning isn't accept for lots of people including those with young children as well as the housebound, elderly and vulnerable.
  4. I

    Cooking with Corona - coping with power cuts

    Sorry, what is istm? I appreciate we all need to be concerned and to protect ourselves and the most significant risk factor is people being silly by trying to ignore it and spreading it by being idiots. However - the utility companies and providers will all have scaleable disaster plans in...
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    Serious Gaming [...] for PW Chronic Pain or Fatigue Symptoms: Mixed Methods Design of a Realist Process Evaluation (2020) Vrijhoef et al.

    There was always the annual local Christmas get together in the little community where I grew up. It always had a massive poker game going on with people dropping in and out. The players were serious but the stakes were small. The quantities of alcohol consumed meant no one was feeling any...
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    Cooking with Corona - coping with power cuts

    I think a lot of people only drink bottled water and only fill the kettle with tap water so I'm not sure I'd pay any heed of that. Unless you're unlucky and there's a storm or something then I'm not sure there is much increased risk of power outages. Also I'm sure the folks.who look after...
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    UK: Priority Setting Partnership for ME/CFS

    It does rather seem that we're back to the fundamental problem - those deemed to be experts are those running clinics - bad and not so bad clinics -a large number of those don't believe that patients can be harmed by the treatments they offer and don't bother to look or check for harms. As...
  8. I

    Coronavirus - worldwide spread and control

    And if they feel well enough they may not bother to self isolate. Especially if there's an event they don't want to miss. Or they decide they want to "just" nip to the shops or something.
  9. I

    Coronavirus - worldwide spread and control

    A lovely idea, but sadly many people are just too short sighted and self centered to either do such a test or inconvenience themselves by staying away from others if it was positive. There have been self testing kits for drivers who who have had a drink. Still people either don't use em or...
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    Coronavirus - worldwide spread and control

    A friend living in Ireland was telling me that despite people testing positive for corona virus they still.plan to go ahead with the big St Patrick's Day parade in Dublin. Her local town, where there were confirmed cases, went ahead with a music festival over the weekend and the town was full...
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    Coronavirus - worldwide spread and control

    He's waiting for an app for that.... Edit - managed to mix.my text into quote.
  12. I

    Coronavirus - worldwide spread and control

    The ease and convenience of global travel probably does mean that no matter what we do sooner or later virtually everyone will be exposed. Even if you spend a lot of money stopping the spread and trying to contain it (within the UK), all it will take is a couple of tourists - ours going abroad...
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    Coronavirus: Advice from ME organisations

    I remember hearing something like this too. Not sure of the nationality though. I don't think they're terribly sure what happened there. Whether there was an issue with the test, whether she was reinfected with the same strain or whether it was a slightly mutated strain. It doesn't seem to be...
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    Coronavirus: Advice from ME organisations

    Not a snowball-in-hell's chance of getting him to remember I'm afraid. You can get stuff specifically for keyboards so I'm hoping maybe they'll have got some of that in. I've just been chatting to him about - apparently they had an office move so his desk & keyboard is shared with just one...
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    Coronavirus: Advice from ME organisations

    I was really hoping IM could work from home next week. Sometimes he can, but at the moment they still want people in to work. His commute to work is fine - he has to drive in anyway. They hot desk in the office though. So while.you can sanitize the desktop, it's harder to do with the...
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    Event: Mitochondria Day - by Biolab Medical Unit - Apr 24 2020

    I can't speak to the quality of the line up in this event but I have had some experience with Biolab. Admittedly it was almost 20 years ago. Two of the people I saw sent tests to Biolab. Both of them routinely sent test samples through to any labs they used. So they might send two samples...
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    Imaging Brain Mechanisms of Functional Somatic Syndromes: Potential as a Biomarker?, 2020, Kano et al

    A further thought - I wonder has it ever occurred to any of these navel gazers that there might be a good reason for the patient's inability to describe how they feel. It might be the sensations they are feeling are completely beyond their normal experience and so they don't have words for it...
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    FINE trial patient booklet 29/04/05 Pauline Powell

    Purely from my personal point of view - Except it isn't. Unless you are actually suffering from fatigue. I have never run a marathon. I have participated in 24 hour sports marathons with about a 2.5 mile walk there and another 2.5 miles back. I was a fit healthy teen. At the end I was...
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    Let’s talk about pain catastrophizing measures: an item content analysis (2020) by Crombez et al.

    Especially when there is no objective means of measurement of pain or fatigue or whatever. Then there's also no objective means of measuring worry or concern. It's like building a skyscraper with marshmallow for the foundations and whipped cream cement.
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