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  1. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    OK this gets into clown territory. Interpol doesn't deal with minor trifle like this, good grief this is as realistic as saying there's an army unit on call just in case. Interpol deals with serious crime, organized crime, most-wanted people, terrorism, coordinating across national police...
  2. rvallee

    Long Covid in the media and social media 2023

    So mysterious... Much head-scratching...
  3. rvallee

    Can psychiatry make medicine better? Michael Sharpe, 29 Nov 2022

    They can't even name a single actual achievement? Just "he ran 3 trials" is good enough to be awarded? You give them an award. In turn they will vote to give you an award. Perpetual motion within humanity's grasp! I assume one of those trials is PACE. A debunked fraudulent trial that caused...
  4. rvallee

    News from Germany

    Of course. The overlap between this ideology and grievances/revanchist politics is a simple circle. It was just a matter of time before they used cancel culture. Frankly I'm surprise it took this long. Sharpe basically said this without using the term, but the roots are the exact same. And this...
  5. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Oh it was worth writing, although even the 2 year mark was already way too long. Just no longer because of the total communication blackout and lack of any progress whatsoever. If the IAG is in the dark about what they're doing... boy, I don't know. I don't think anything's happening anymore...
  6. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I'm not sure it's worth writing to Bastian. I don't know what happened but this is no different than nothing happening. Either she abandoned quietly or frankly it doesn't even matter, the process is so awful that it's no better than nothing. All in secret behind closed doors with zero concern...
  7. rvallee

    Long Covid in the media and social media 2023

    That's not rehab, though. That's convalescence. Enough with this crap. Those resources are completely wasted just being there while some improve and others don't. This is all even more worthless than freaking homeopathy. It's literally built for the medical professionals to feel good. Somehow...
  8. rvallee

    There is a worrying amount of fraud in medical research, 2023

    Judging from the intro, I doubt they include anything BPS. Sometimes I wonder if it's because it's not considered real research, or medically relevant. Or if it's just because we're considered worthless so fraudulent research is OK for us. But this is a vast underestimate if it does not include...
  9. rvallee

    Two-year follow-up of patients with post-COVID-19 condition in Sweden: a prospective cohort study 2023 Wahlgren et al

    Ah, yes, the magical rehabilitation that just makes all illness go away if you just put some effort into it. It's been 3 years and they're still with their feet planted on the starting line. Really, it's no wonder progress in medicine is so slow. The process is complete garbage and is fully...
  10. rvallee

    Long Covid in the media and social media 2023

    Yesterday I noticed two articles posted on forums not particularly frequented by long haulers, general public forums, discussing growing evidence of Long Covid and generally sequelae of Covid and the tone is really shifting, so many people have seen their health seriously degraded, or a loved...
  11. rvallee

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Lots of big claims in this thread. From unpublished research. Long thread so will try to capture the most salient. Several mentions that they'd need an equivalent of UK's NIHR to streamline the effort, but that's not much hope given what little they have done, and nothing useful has...
  12. rvallee

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    They almost seem addicted to wasting money on useless stuff that never delivers anything. It's baffling. As if this money needs to be burned for nothing. But then again, belief systems are always weird from the outside.
  13. rvallee

    Hampshire Hypnotherapy and Counselling Centre (private clinic)

    I don't think this is especially new. There have always been snake oil peddlers, shamans and faith healers of all kinds. They always worked this way. It's all about manipulation and even the BPSers haven't taken it to the level of science, it's still a clumsy art that only works because they...
  14. rvallee

    Prevalence of autistic traits in functional neurological disorder and relationship to alexithymia and psychiatric comorbidity 2023 Cole et al

    Looking at the AQ-10, there will be many positive responses from any generic chronic illness where exhaustion and cognitive impairment are involved. Several of the questions are ambiguous enough to be misinterpreted. Autism science is terrible. I see much of the same criticism from this...
  15. rvallee

    Nature article: 2023 Your brain could be controlling how sick you get — and how you recover

    Literally. If there's one common factor to all psychosomatic ideology, it's not giving a fig about cause, having decided on a different magical cause that needs no evidence as it's just a bunch of stories and ugly prejudice. If there is one small change that could reform medicine for good, it's...
  16. rvallee

    Dynamic modeling of experience sampling methodology data reveals large heterogeneity in [BPS] factors associated w/persistent fatigue... 2023 Nijhof

    Literally all they have at this point is "the mind works in mysterious ways". It's not borderline religious, it is entirely a faith-based system. There are many less mystical religions out there. It wouldn't be half as ridiculous, and harmful, if they didn't turn around pretending they know all...
  17. rvallee

    SARS-CoV-2 spike protein induces TLR4-mediated long-term cognitive dysfunction recapitulating post-COVID syndrome in mice, 2023

    No reason to think this is unique to this particular protein? Should be true of other proteins and molecules recognized as foe by the immune system. If you inject directly into the brain anyway. So the issue would be more about the mechanism by which viral proteins can reach that far...
  18. rvallee

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    RACGP to advocate for more support at long COVID inquiry https://www1.racgp.org.au/newsgp/clinical/racgp-to-advocate-for-more-support-at-long-covid-i ‘There’s been an ignored urgency to have a strategic response to post-virus syndromes in general,’ he said. ‘People who have chronic fatigue...
  19. rvallee

    Dynamic modeling of experience sampling methodology data reveals large heterogeneity in [BPS] factors associated w/persistent fatigue... 2023 Nijhof

    That's one way of presenting having no relevant data to support a long-asserted conclusion. A terribly misleading one, but still it's one way. Of course those factors are heterogenous, they're not important. You would likely find the same about musical or food preferences. Never has a solution...
  20. rvallee

    The pain psychologist Rachel Zoffness expains why pain is a “biopsychosocial phenomenon“…. Ezra Klein, New York Times columnist

    I'd take this a bit further. I assume you mean that we can't be certain right now, but I think that this uncertainty is just as inevitable as the uncertainty principle in quantum physics. The human body is simply too vast and complex to know as a black box that cannot be disturbed, unlike a...
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