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  1. Dx Revision Watch

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    In 2003, the NCHS/CDC published a draft of the ICD-10-CM for consultation, testing etc. This had been the proposed structure for the terms as the draft has stood in 2003 (screenshots sourced from 2003 draft Tabular List, a copy of which I have archived.) In 2004, Bill Reeves gave a...
  2. Dx Revision Watch

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    As I've said in my post: "NOS" in ICD classification systems means "Not otherwise specified". Donna Pickett and other CDC and U.S. health agencies have given the following guidance: https://dxrevisionwatch.com/2011/10/20/coding-cfs-in-icd-10-cm-cfsac-and-the-coalition4mecfs-initiative/...
  3. Dx Revision Watch

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    I was recently called "...Toxic, patronising and lacking in any sort of consideration." on Twitter for expressing a polite objection to the statement: "...They tend to be the older, longer suffering MEeps, obsessed with the history and politics of the disease."
  4. Dx Revision Watch

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    This maybe needs some clarification for those who are not familiar with the U.S.'s ICD-10-CM: In the WHO's international edition of ICD-10 (for which the most recent release is ICD-10 Version: 2019) the ICD-10 "Concept Title" code is: G93.3 Postviral fatigue syndrome The specified Inclusion...
  5. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    But Dr Charles Shepherd reported: "....Unfortunately, the meeting got off to an extremely regrettable start – all due to a very small section of the audience making repeated and sometimes very aggressive interruptions about various administrative matters. As a result of this gross discourtesy...
  6. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    It may be of interest to know that when Des Turner was Chair of the APPG on ME, at the time when orgs and members of the public were permitted to attend these meetings, Des had threatened members of the public with being escorted out of the building by Parliament security. See also...
  7. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    The Countess of Mar's Forward-ME group did not start until 2008. But all those reps from charity orgs listed above were there as guests. Even org reps designated as providing Secretariat services are not members of the APPG on ME. And no-one has a vote at an APPG meeting other than MPs and...
  8. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    As I've just explained: none of the orgs above were "Associate Members". They were all orgs that were permitted at the time to attend as guests. The rest were members of the public who were permitted at the time to attend as guests. That particular APPG on ME permitted members of the public...
  9. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    As I say, I'd rather see a small number of committed MPs and members of the HoL who are prepared to attend regularly involved from the beginning than a large number. What happened to that original 100 who showed initial interest in 2005? They would all have been receiving notices two weeks...
  10. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    The current list of APPGs (Country Groups and Subject Groups) can be found here: https://publications.parliament.uk/pa/cm/cmallparty/200224/contents.htm
  11. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    The Register of APPGs for 2020 has been published in the last few days: https://www.parliament.uk/mps-lords-and-offices/standards-and-financial-interests/parliamentary-commissioner-for-standards/registers-of-interests/register-of-all-party-party-parliamentary-groups/registers-published-in-2020/...
  12. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I'd be looking for quality, short and long-term commitment, over numbers. Little point having 30 or more MPs and Members of the HoL turning up for an initial meeting, if in practice, only a handful (or less than a handful) bother to attend subsequent meetings or do attend, but infrequently. An...
  13. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    In my experience, although APPGs used to require 20 "Qualifying members" in order to register a new group, after the inauguration meeting, it was pretty much unknown for anything like the full 20 "Qualifying members" to pitch up at subsequent meetings. Not unknown, either, for MPs to sometimes...
  14. Dx Revision Watch

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Where does the figure of 100 MPs and Lords attending APPG on ME meetings in 2005 come from, please?
  15. Dx Revision Watch

    IAPT requests addition of DSM-5's Somatic symptom disorder (SSD) to SNOMED CT for use in Data Set v2.0 to replace "MUS - not otherwise specified"

    Other notable Inactive Concept terms: Funny looking kid SCTID: 112630007 | Abnormal facies (finding) | GOK - God only knows SCTID: 158729002 | (Morbidity/mortality unknown [D]) or (God only knows) (situation) |
  16. Dx Revision Watch

    IAPT requests addition of DSM-5's Somatic symptom disorder (SSD) to SNOMED CT for use in Data Set v2.0 to replace "MUS - not otherwise specified"

    This is interesting: https://isd.hscic.gov.uk/rsp-snomed/user/guest/request/view.jsf?request_id=21089 Request 21089 Submitted 12/08/16 Type Change concept Status Closed - Complete Concept identifier 78667006 Priority Important Brief summary of the request Conflated descriptions...
  17. Dx Revision Watch

    IAPT requests addition of DSM-5's Somatic symptom disorder (SSD) to SNOMED CT for use in Data Set v2.0 to replace "MUS - not otherwise specified"

    https://isd.hscic.gov.uk/rsp-snomed/user/guest/request/view.jsf?request_id=138 Request 138 (which I noted a couple of years ago on the other forum) was for addition of the Synonym terms: Myalgic Encephalitis Myalgic Encephalopathy under the Synonym list for Concept SCTID 52702003 | Chronic...
  18. Dx Revision Watch

    IAPT requests addition of DSM-5's Somatic symptom disorder (SSD) to SNOMED CT for use in Data Set v2.0 to replace "MUS - not otherwise specified"

    Requests for changes to SNOMED CT UK Edition go through these stages: Submitted In Progress Clarification requested Clarification received Request provisionally accepted (current status of Request 29847) Closed - Complete Closed - Exists Closed - Declined Referred to SNOMED International...
  19. Dx Revision Watch

    IAPT requests addition of DSM-5's Somatic symptom disorder (SSD) to SNOMED CT for use in Data Set v2.0 to replace "MUS - not otherwise specified"

    Elaine Wooler (Principal Terminology Specialist, Terminology and Classifications Delivery Service NHS Digital) has confirmed receipt of my feedback and said that she will investigate further which will need discussion with the IAPT programme. I will keep you apprised of any developments over...
  20. Dx Revision Watch

    IAPT requests addition of DSM-5's Somatic symptom disorder (SSD) to SNOMED CT for use in Data Set v2.0 to replace "MUS - not otherwise specified"

    Moderator note: This post has been moved from a thread about an article that has been deleted. ____________________ EDITED: I've heavily edited this post for better context now it's been moved from its original location: This thread is a spin off thread from this thread: Treating medically...
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