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Thank you @Wits End. I did start to complete the yellow card but it was complicated and I'm not at my best so it was left. I hope to return to it. Dr John Campbell who is very pro v in his interview with Kyle commented that he thought the card was difficult to complete and needed to be made...

Fairly briefly. I have posted my responses to AZ 1 and 2 earlier on this thread. Despite severe responses especially to 1, I made few antibodies which really bothered me. I cancelled a family holiday and was glad when J Van Tam announced an additional v for the immunocompromised. I was referred...

I emailed MEA to withdraw my direct debit only to find my membership had expired on 1st September even though I've continued to receive emails and publications. I have written to say I will not be renewing.

Thank you @TigerLilea. I am very sorry you are so badly affected. Five and a half months is a long time to be so ill. I had improved enough by 3 months to have the second. By then the nausea was gone, tinnitus gone, weakness improved although other symptoms still remaining. I had no severe...

I'm eight and a half months post v1 AZ and five and a half post v2. Most of my symptoms after v1 went at about the 11 week mark just in time for v2. The most frightening symptom was the recurrent throat angioedema which meant I had to take antihistamines fast and sit with epipens in hand...

Long covid does have an APPG chaired by libdem Layla Moran. edit:She is MP for Oxford West and Abingdon. The last time I looked there was no libdem MP in the ME APPG. I think they have difficulty covering all briefs with just 11MPs.

This post and the following discussion have been moved from this thread: NICE pauses publication of updated ME/CFS guideline hours before publication was due - 17th August 2021 _____________________________ John Thompson @TompsJ Replying to @JanetDafoe 3/ History of CFS/ME - King's College...

That concerns me too.

From the above "This is separate to an expected general autumn booster programme." "Severely immunosuppressed people would still likely be offered a booster dose some weeks after their third dose."

Moved posts JCVI has just approved an additional vaccine dose for severely immunosuppressed people over the age of 12. https://www.medscape.com/viewarticle/957963?src=wnl_newsalrt_uk_210901_MSCPEDIT&uac=324782FT&impID=3608476&faf=1 edit: this is separate to an expected autumn vaccine...

I have seroconverted and would be POS on a pos/ neg scale. But I have only a low number of antibodies and 'borderline ' T cell response.( separate test) I don't know how to interpret this. My GP says I am immunocompromised and need a booster. So after 2 jabs which made me very ill for months, I...

Thank you for that clarification @Valerie Eliot Smith

Thank you for your dedication and hard work in producing such a well thought out letter.

Headline in hard copy much better. ME guidance ( in red) 250,000 patients in limbo as Nice delays advice. edit: no mention of Chalder. Sources- Jonathan Edwards, Charles Shepherd, Michael Sharpe edit2: haven't done more than scan the thread but hard copy looks very different. Still unhelpful...

Just announced in the Telegraph - booster jabs delayed to await results of a 'major clinical trial' https://www.telegraph.co.uk/news/2021/08/28/rollout-covid-19-booster-vaccines-delayed/

@Andy @Gecko Mr B has just had a report from a friend who signed the petition. After he signed it, there was a link directing him to another petition about ME. Link follows- do NOT SIGN-it leads to a petition about ME recommending osteopathy and the Perrin technique. It has about 1300...

2930

https://www.nejm.org/doi/full/10.1056/NEJMoa2108891?fbclid=IwAR3net26w_EXaSafMD1jBeG30g3VkmK9MIJZLUC88vU90eMiBuUW5P4Oytg Vaccine efficacy against alpha and delta variants are compared. On fb groups I have read many reports of individuals not proceeding to the second vaccine but evidence on the...

Some specialist centres ( eg the one I formerly attended about 10/11 years ago) are now headed by a psychiatrist. I cannot see that this is appropriate. How can staffing issues like this be dealt with?