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  1. J

    The Role of Ketamine Infusion for Patients with MS-Related Fatigue

    https://www.neurologyadvisor.com/topics/multiple-sclerosis/the-role-of-ketamine-infusion-for-patients-with-ms-related-fatigue/ Primary outcome of the study was negative. Reference Fitzgerald KC, Morris B, Soroosh A, et al. Pilot randomized active-placebo-controlled trial of low-dose ketamine...
  2. J

    Regional microglial activation in the substantia nigra is linked with fatigue in MS, 2020, Singhal et al.

    https://www.healthrising.org/blog/2020/10/15/fatigue-nucleus-multiple-sclerosis-fibromyalgia-chronic-fatigue-syndrome/ Cort’s write up.
  3. J

    Keith Jarrett Confronts a Future Without the Piano

    https://www.nytimes.com/2020/10/21/arts/music/keith-jarrett-piano.html?action=click&module=Editors Picks&pgtype=Homepage Mentions his CFS
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    Aripiprazole - Abilify

    @Jessie 107 how long have you been on Abilify? Thanks
  5. J

    Aripiprazole - Abilify

    80% of patients improve on Abilify according to RD
  6. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    Rescheduled A Message from Survivor Corps: We are pleased to inform you that our rescheduled COVID Live Webinar with Dr. Anthony Fauci will be taking place on Friday, October 30 at 2PM EST. We wanted you to be one of the first to know. Please pre-register at this new eventbrite link The...
  7. J

    Kynurenine pathway is altered in patients with SLE and associated with severe fatigue, 2018, Akesson et al.

    https://lupus.bmj.com/content/5/1/e000254
  8. J

    Potential Role of Neuroactive Tryptophan Metabolites in Central Fatigue: Establishment of the Fatigue Circuit, 2020, Yamashita

    https://journals.sagepub.com/doi/full/10.1177/1178646920936279
  9. J

    Upadacitinib (rinvoq)--could it reduce fatigue in ME/CFS?

    https://www.medpagetoday.com/rheumatology/arthritis/89124 Upadacitinib, Abatacept Go Head to Head in RA
  10. J

    Aripiprazole - Abilify

    Yes, please see my post on the first page of this thread.
  11. J

    Aripiprazole - Abilify

    https://www.medscape.com/viewarticle/938707 Antipsychotic Added to Antidepressant Linked to Higher Mortality
  12. J

    Aripiprazole - Abilify

    Some meds stopped working after a while, but I didn't find that this ended up making me worse overall. Specifically, valtrex worked brilliantly for a couple of months then it stopped working. Similarly Arcoxia worked at a more mild level for a while, now it doesn't really do much for me...
  13. J

    Aripiprazole - Abilify

    There is no push. People are trying it and getting better. If you don’t want to try it that is your prerogative. Be aware that there are also many health risks associated with untreated MECFS. People die from MECFS.
  14. J

    Aripiprazole - Abilify

    https://www.healthrising.org/blog/2020/10/03/celebrating-whitney-dafoe-awakening-37th-birthday/?fbclid=IwAR2Vn-Q6gQUNgCMLnQIA8qsyT4sLeboxDQR6VCWBFZ1dXvLBRZvyWndMT2Y Celebrating Whitney Dafoe and his “Awakening” on his 37th Birthday ABILIFY!!!
  15. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    **POSTPONED** Conversation with Dr. Fauci to be re-scheduled A Message from Survivor Corps: We regret to inform you at this late time, that due to current events and circumstances beyond our control, Dr. Fauci has had to cancel his participation today. We are in the process of re-scheduling...
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    Dr Fauci - Survivor Corps Webinar (no live links)

    Please send questions here to indicate that long haul Covid with neuro symptoms is MECFS at 4 or 6 months. Thank you. HQ@survivorcorps.com
  17. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    Survivor Corps COVID Live Webinar Series: 2:00 - 2:30 PM EST Covid Conversation: #LongCovid Founder Diana Berrent will have a one on one discussion with Dr. Anthony Fauci , the nation’s leading expert on COVID-19. Topics: Long Haul Covid, Post-Covid Care and future of treatments for Survivors...
  18. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    My question is why are you calling MECFS “long Covid” ?????
  19. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    https://www.eventbrite.com/e/a-conversation-with-dr-anthony-fauci-md-registration-123280809219
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