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  1. J

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    I agree that this may be an important paper. I am just not optimistic that there will be any way of fixing this. The track record on treatments for other neurological diseases is not so good.
  2. J

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    Hmmm. They don’t suggest any treatments in the paper.
  3. J

    L-dopa for ME/CFS? Prescribed for a Patient on Twitter

    Did it work for/help the patient? No sense doing a cost/benefit if we don’t know if it worked....
  4. J

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Prognosis
  5. J

    MS research versus ME/CFS research

    For me, I have fatigue per se. This along with brain fog are my worst 2 symptoms. For me, fatigue is not a diversion, it is a real issue.
  6. J

    MS research versus ME/CFS research

    MECFS research should be able to leverage the huge funding for MS, especially, for symptom treatments. MS and MECFS both have fatigue and cognitive dysfunction as major symptoms. If a treatment works for these symptoms in MS, then likely it will work for these same symptoms in MECFS.
  7. J

    MS research versus ME/CFS research

    So the big European MS meeting just finished a couple of days ago. The scientific program book is 131 pages long for a three day meeting!! https://www.professionalabstracts.com/ectrims2019/programme-ectrims2019.pdf Why is there so much more MS research than MECFS research? Are there really...
  8. J

    Why does levamisole help me? Mitochrondia, a7nAchR, Tryptophan

    Thanks for posting.
  9. J

    Cyclophosphamide

    In his recent talk at Stanford, Dr. Fluge mentioned (I think) that the cyclophosphamide open trial will need to be followed up with a RCT trial. @Jonathan Edwards mentioned previously that it is not possible to blind a cyclophosphamide trial because it induces severe nausea. So what to do...
  10. J

    Lucky Dog Show—EDS episode

    Saw this on TV by chance. Found it on the internet.
  11. J

    Dogs Are Dying Suddenly in Norway

    Here is a CNN article https://www-m.cnn.com/2019/09/10/europe/norway-dog-disease-intl-hnk-scli/index.html?r=https%3A%2F%2Fwww.cnn.com%2Fsearch%3Fq%3DDogs%2BNorway
  12. J

    Dogs Are Dying Suddenly in Norway

    https://www.nytimes.com/2019/09/10/world/europe/norway-dog-deaths.html?action=click&module=Latest&pgtype=Homepage Lot of stuff going on in Norway....why am I sure that this story will garner far more media coverage than all the MECFS issues in Norway?
  13. J

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    @Rain copaxone has been available worldwide for over 10 years now. Also available as a generic.
  14. J

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Yup, good news....His lips are sealed.......
  15. J

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    anybody on here attending in person? Maybe someone can find out the status of the Fluge cyclophosphamide study publication? Long way to submitting/ready to submit/in review? Or maybe he might mention something about the study during his talk other than that the results are interesting? Of...
  16. J

    An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS Patients Missailidis et al. 2019

    Meaning that researchers should focus on tissue cells and not blood cells?
  17. J

    Liver-targeted Nano-MitoPBN normalizes glucose metabolism by improving mitochondrial redox balance, 2019, Wu et al

    Mito PBN=? Peanut Butter Nutcrunch? Structure not defined in the paper nor is it in Ref 13 or 14. Did I miss something?
  18. J

    Lipid profile is associated with decreased fatigue in individuals with progressive multiple sclerosis following a diet-based intervention: Results fro

    Lipid profile is associated with decreased fatigue in individuals with progressive multiple sclerosis following a diet-based intervention: Results from a pilot study https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0218075 Popular article...
  19. J

    Effect of dalfampridine on information processing speed impairment in multiple sclerosis, 2019

    https://n.neurology.org/content/93/8/325 Dalfampridine improves slowed processing speed in MS Picking up the pace Accompanying editorial in Neurology to above posted article
  20. J

    Effect of dalfampridine on information processing speed impairment in multiple sclerosis, 2019

    https://n.neurology.org/content/93/8/e733 Popular article Old MS Drug May Improve Cognitive Function https://www.medscape.com/viewarticle/916495
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