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  1. J

    Microstructural fronto-striatal and temporo-insular alterations are associated with fatigue in patients with multiple sclerosis 2019 Palotai et al

    https://multiplesclerosisnewstoday.com/news-posts/2019/08/26/persistent-ms-related-fatigue-linked-to-damage-in-specific-brain-regions/ Study here https://journals.sagepub.com/doi/10.1177/1352458519869185
  2. J

    Targeting of reactive isolevuglandins in mitochondrial dysfunction and inflammation, 2019, Dikalov et al

    Where to get Mito2HOBA water? Looks like they aren’t marketing it yet.
  3. J

    Scientists reverse aging process in rat brain stem cells—Nature

    Interviews with authors. https://www.thenakedscientists.com/articles/interviews/reversing-ageing-brain
  4. J

    Scientists reverse aging process in rat brain stem cells—Nature

    https://www.sciencedaily.com/releases/2019/08/190814130726.htm https://www.nature.com/articles/s41586-019-1484-9 Unstiffen my OPC microenvironment, please.
  5. J

    Cyclophosphamide

    https://www.curetoday.com/publications/cure/2018/summer-2018/lifting-the-fog-on-chemo-brain Brain fog from chemo— interesting.
  6. J

    FDA Approves Pitolisant for Daytime Sleepiness in Patients with Narcolepsy

    Because it also aids in “improved cognition, as evidenced by increased processing speed and improved mental clarity.” at least in PWS, i.e., less brain fog.
  7. J

    Using patient experience data for drug approvals--SciAm article

    Here is a link to the paper they published. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6478354/
  8. J

    Using patient experience data for drug approvals--SciAm article

    https://blogs.scientificamerican.com/observations/a-streamlined-pathway-to-drug-approval/ Author advocates for using patient experience data and open trials in lieu of RCT.
  9. J

    FDA Approves Pitolisant for Daytime Sleepiness in Patients with Narcolepsy

    https://www.pharmacytimes.com/news/fda-approves-pitolisant-for-daytime-sleepiness-in-patients-with-narcolepsy Wonder if this could help with fatigue in mecfs?
  10. J

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    @Robert 1973 @RDP mentioned on PR that he had submitted a trap paper for review, but that the journal was having difficulty finding reviewers with a background in both MECFS and system modeling, so the review is delayed a bit apparently.
  11. J

    Health facts aren’t enough NYT article

    https://www.nytimes.com/2019/07/22/upshot/health-facts-importance-persuasion.html?searchResultPosition=1 Interesting....
  12. J

    Michelle Akers—CTE study

    https://www.espn.com/soccer/fifa-womens-world-cup/story/3887627/akerschastain-to-take-part-in-new-cte-study I thought Michele Akers has CFS? Maybe it is CTE or both? BTW Congrats to the US Women’s football/soccer Team...condolences to the English and other fans here
  13. J

    Cyclophosphamide

    https://www.sciencedaily.com/releases/2019/07/190701144521.htm High doses of 60 plus-year-old chemo drug found to spur immune system attack on lymphoma New mechanism found for cyclophosphamide for cancer treatment
  14. J

    Avril Lavigne tour to benefit serious illnesses

    Here is the foundation. No specific MECFS groups listed. Topic for another thread I guess, but isn’t “chronic Lyme” just MECFS with a Lyme infection trigger? Better for overall research funding if Lyme groups could merge with MECFS groups. https://theavrillavignefoundation.org/partners/
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    Avril Lavigne tour to benefit serious illnesses

    https://www-m.cnn.com/2019/06/25/entertainment/avril-lavigne-new-tour/index.html?r=https://www.cnn.com/
  16. J

    Mental fatigue is linked with attentional bias for sad stimuli, 2019, Watanabe et al

    critical, vital research..... Probably cost $100-200,000 to do this incl. pay for the six researcher's time---next time please just have them write a check directly to OMF, so much more efficient.
  17. J

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    sounds like Cortene maybe not so much http://birdbeeme.com/hello-again/ Nice, sensible blog post here on her web site (esp. point about positivity) http://birdbeeme.com/how-to-treat-a-chronically-ill-person-what-to-do-and-not-do/ (not Cortene related--please split post if needed)
  18. J

    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center, Lipkin

    Hmm I guess I missed this? Also agree with above mentioned reddit comment that they should engage here—I don’t usually check reddit.
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