Avril Lavigne tour to benefit serious illnesses

[Jaybee00]

https://www-m.cnn.com/2019/06/25/en...ne-new-tour/index.html?r=https://www.cnn.com/

According to Rolling Stone Magazine, one dollar from every ticket purchased will go to benefit the Avril Lavigne Foundation, which supports people with Lyme disease, serious illnesses or disabilities.

https://www-m.cnn.com/2019/06/25/entertainment/avril-lavigne-new-tour/index.html?r=https://www.cnn.com/

 

[Jaybee00]

Here is the foundation. No specific MECFS groups listed. Topic for another thread I guess, but isn’t “chronic Lyme” just MECFS with a Lyme infection trigger?

Better for overall research funding if Lyme groups could merge with MECFS groups.

https://theavrillavignefoundation.org/partners/

 

[theJOYdecision]

Here is the foundation. No specific MECFS groups listed. Topic for another thread I guess, but isn’t “chronic Lyme” just MECFS with a Lyme infection trigger?

I am no expert in Lyme but one thing I heard from a daughter of a patient is that Lyme can remain in the body after treatment and re-emerge at any time, like shingles for example. And it needs to be retreated every time. Again this is word-of-mouth knowledge from a patient’s adult daughter. I’d feel more confident about this if I had heard it from patients themselves or a specialist.
If someone has ME as a result of Lyme AND they are having that Lyme reoccur in their body.... lets just say they would have every ounce of my sympathy!

 

[duncan]

but isn’t “chronic Lyme” just MECFS with a Lyme infection trigger?

The short answer is No.

The other short answer is Yes.

There are purist stances on both. Stuff in between, too.

It's so convoluted. It boils down to things like definitions and assumptions and subsets and far, far too many hypotheticals.

But it's fodder for good discussions, at the least. Even better, perhaps, foundation for coalitions.