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  1. rvallee

    Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort... 2022 Parker et al

    I was thinking more of a letter to the editor, as some journals have. Not sure I have the energy to debate with someone that their paper is bad, all I can do is a one-off summary of the issues. This seems like the responsibility of the journal. It's an option, though. I'll see how pissed off...
  2. rvallee

    OpenAi's new ChatGPT

    Found a good example for what I mean by using GPT to write comments or papers to submit to official proceedings, a psychiatrist with dyslexia and for whom English is second language. They write their draft, then ask GPT to make it better. I really think people ought to give it a try. There will...
  3. rvallee

    CDC announces Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) program

    Seriously, this better not be the whole budget. My ex-girlfriend was studio manager for a major video game development company and their Christmas party was more expensive than this.
  4. rvallee

    CDC announces Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) program

    New CDC Foundation Program Focuses on Creating Partnerships to Address Chronic Conditions Caused by Infections, Including Long COVID...
  5. rvallee

    Tissue specific signature of HHV-6 infection in ME/CFS, 2022, Prusty et al

    OK this may start to get interesting about one particular feature of peptic ulcers: they are caused by the H. Pylori bacteria, but nearly everyone carries those bacteria in our stomachs, they only seem to cause ulcers when they manage to breach the lining, the factors for this being unknown...
  6. rvallee

    Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort... 2022 Parker et al

    Ugh. I don't see a way to send a letter. This cannot stand, the word pacing in the context of Long Covid has a meaning and it's the opposite of this. It should not be acceptable to distort the meaning of common words like this, it's as invalid as describing a vegetarian diet that allows for as...
  7. rvallee

    Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort... 2022 Parker et al

    I'm sorry... "phase" of the protocol? Ah, so not pacing at all, this is GET-by-lying. All exertion is the same, this is the main problem dealing with PEM/PESE. The complete inability of medicine to understand that this is about exertion, and the endless obsession with making it all about...
  8. rvallee

    Approach to the child with fatigue: A focus for the general pediatrician 2022, De Nardi et al

    Pragmatic trials aren't even supposed to be used to infer cause or etiology. They are not capable of it, especially not with the evidence they have, all a bunch of "may be" and "could be" lacking a single bit of objective evidence. This is reckless endangerment, blatant disregard for the role...
  9. rvallee

    Altered sensorimotor processing in IBS: Evidence for a transdiagnostic pathomechanism in functional somatic disorders 2022 Schröder et al

    One disorder, many flavors: Functional fatigue. Functional GI issues. Functional headaches. Functional dysfunction. All the same to them, but given different labels to pretend otherwise. Truly the biggest scam in professional history. It's one disorder, the conversion disorder, but it's so...
  10. rvallee

    Understanding Long COVID; Mitochondrial Health and Adaptation—Old Pathways, New Problems 2022, Nunn et al

    Also, we wouldn't even be talking about this if it wasn't for the accusations of laziness and the myth of deconditioning, hardly anyone would feel the need to emphasize it. It's in response to those false accusations that it's said so often. But the accusations and myths are all there is about...
  11. rvallee

    Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al

    Hey this is pretty close to the questionnaire I had in mind. Just take regular activities of daily living, ranked by order of exertion, and grade them according to how sustainable they are. Some similar ideas to some questionnaire that was discussed a while ago, Pittsburgh something, but better...
  12. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    A recent and very relevant phrase that is about politics so will not specify but really sums up the same thing: I've been thinking lately of the value of putting this out as a challenge to the ideologues: that LC is the definitive test of their model. Only problem with that is that I don't...
  13. rvallee

    Long Covid in the media and social media 2022

    In Switzerland some people noted that a lot of people are out of work because of Long Covid/chronic illness and simply asserted it is a mental health crisis. So basically blind twice over: blind about what's happening, and blind about why it's happening. With experts like this, of course...
  14. rvallee

    Fatigue and perceived fatigability, not objective fatigability, are prevalent in people with post-COVID-19, 2022 Fietsam et al

    This is a good example of actual biological reductionism. On what basis has it been decided that this single test is a reliable objective measure of fatigability? Is fatigability even well-defined enough to be of use? When fatigue is clearly not? When PEM is involved, another concept that...
  15. rvallee

    Gravity and the Gut: A Hypothesis of Irritable Bowel Syndrome 2022 Brennan

    True. But it seems to mostly revolve around interoception and stuff like this, about signals sent because something is being sensed. At least that's how I understand it. There's just no need to add gravity to this, it's just silly. The generic idea of interoception and stuff like that is old...
  16. rvallee

    Increases in Stress Hormone Levels in a UK Population During in the COVID-19 Pandemic: A Prospective Cohort Study 2022 Jia,Chalder et al

    Just as anxiety can almost always replaced be with "I don't like this", stress can be substituted to mean exertion in 90% of cases where it's used. Or maybe unavoidable exertion, if we're to make "stress" meaning something more. The inability to pay attention to details is what makes it...
  17. rvallee

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    I didn't quite catch that, but they basically made up their own ad hoc definition, one that is obviously weird and inappropriate. Even though there are better definitions, which they reject because they are not accepted by... them. Seems like something especially problematic in the course of a...
  18. rvallee

    Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers, 2022, Duncan et a

    The use of the word empowerment in particular, but also in general the idea that self-management amounts to anything other than negligence leading to needless suffering and early death for millions. We do not "self-manage" this because it's the best way, a good way, or any way to deal with this...
  19. rvallee

    Clinical Psychologists as T-Shaped Professionals, 2022, Vriesman et al

    It's definitely true of many disciplines. Healthcare is a clear outlier on this, though. I don't really see the role of clinical psychologists on this, though. They've basically become jacks-of-all-trades about everything in healthcare that isn't medical care. I have no idea how psychologists...
  20. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    Typical to form, the SMC seems to be willfully participating in the blaming of lockdowns-that-were-very-limited-and-in-no-way-actual-lockdowns leading to reduced infections. It repeats the lie that those pathogens were not seen in the last 3 years, which is actually a big tell about medicine's...
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