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The book fits this thread's topic perfectly... From p. 140:

Thank you @Grigor -- your blog might be the most apt answer. And thank you @Andy and @adambeyoncelowe for reminding me of @Grigor's blog .

Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper: https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/#post-55894 - Graham's video...

link to the conference on eventbrite: https://www.eventbrite.co.uk/e/management-of-mecfs-adult-paediatric-first-do-no-harm-tickets-46131336068?aff=ebdssbdestsearch Hope 4 ME & Fibro Northern Ireland's homepage: https://hope4mefibro.org/ ETA: Natalie Boulton, Producer of the award winning...

Do we know whether they have been asked yet? @dave30th, did you contact Carmen Scheibenbogen and her team? ( https://me-pedia.org/wiki/Carmen_Scheibenbogen )

I would prefer not to have the private docs involved, seconding @Jonathan Edwards' point: btw, never heard of Dr. Pfeiffer - do you have a link, @Inara ?

Thank you both, @Kalliope and @Jonathan Edwards! Such a relief to read this! -- my confidence in Lenny Jason is restored. Very good to know. It's a pity that Derek Pheby is not doing epidemiological studies himself anymore. I just had a quick glance and found his research very promising...

Thanks, @Jonathan Edwards. It was not only the BPS bits that irritated me, but also the seemingly low quality of their papers and scientific appoach. I also don't trust another member's expertise who isn't BPSophil at all https://me-pedia.org/wiki/Olli_Polo. I mean, is EUROMENE really only a...

Doesn't sound good.

This thread has been merged as both discuss Euromene I hesitated to open this thread, but after I had a second glance at one of the EUROMENE members' CV and an article co-authered by another member, I would like to share my readings with you. (I won't comment any further ATM - I thought this...

Then, what do forum members think about Michael VanElzakker's ME research project? https://because.massgeneral.org/campaign/support-myalgic-encephalomyelitis-chronic-fatigue-syndrome-exercise-challenge-study/c168141 And, what do you think, is any of the EUROMENE groups capable of pursuing the...

Looking at the BPS approach's omnipresence with regard to sociomedical issues (especially pension scheme and rehab related, also for "organic" illnesses), and searching for any sensible application of an BPS approach in the medical world, I finally came across the WHO's BPS belief system -- it's...

seems to have just moved:

Thank you, @adambeyoncelowe . Sounds really interesting. But what are "EVs"?

Have not read the (paywalled) article nor watched the video, but it would be interesting what kind of workplace adjustments were discussed. In my mild phases I probably would have benefited from two adjustments: part-time employment, and the possibility (and acceptance) of lying down during...

I agree with almost every point above, @Robert 1973 . I think we should be cautios with the term "measurable" in your last point, though: Aren't these studies based on subjective measures? And could also be interpreted as (wrong/unhelpful) "illness beliefs" or exaggerated perceptions? I think...

Unfortunately, in Germany, in most cases whether you get an "F" or a "G"-(or other "somatic") ICD-Code diagnosis is extremely relevant for doctors to assess your grade of suffering and disabilities. Actually, for any relevant medical, especially sociomedical decision, it matters whether you are...

Thank you, @Jonathan Edwards. Once again, your answers are very helpful. And once again, I am too slow to ask further, more specified questions right now. I will come back to some points maybe in related threads. Only two points for now (even though they might be more relevant for the thread...